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  •      Latest Comments on News

     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by LymieLizzie
     Re: London: Lyme Disease Patients Alliance to Protest at Whitehall
    by jacqui39
     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by MacMcd
     Re: Review: The Poison Plum by Les Roberts
    by penslayer
     Re: Gary Blier of Allergy Associates under investigation
    by mtsconverter


    The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease. A never befor

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     By: Lymielizzie
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       "Lizzie's Lyme Expression & Fellowship FB"
     By: JennyScott
    On: 05-27-2013
     By: JennyScott
    On: 05-27-2013
       "I'm still here...."
     By: JennyScott
    On: 05-27-2013
       "Yes, I still exist!"
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    On: 02-24-2013
       "Caring for an Adult Male with Neurolyme"
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    On: 09-15-2012
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    Guidelines by JOSEPH J. BURRASCANO JR., M.D.
    Download PDF File
    ILADS Evidence-based Lyme Treatment Guidelines
    International Lyme and Associated Diseases Society
    Download PDF File


    ·Remembering Leslie Wermers. Seven years ago today2015-11-02 00:00:00
    ·NatCapLyme Board Member Dies from Lyme Disease at 442015-04-23 14:05:27
    ·Remembering Leslie Wermers. Six years ago today2014-11-02 00:00:00
    ·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
    ·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
    ·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
    ·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
    ·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
    ·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
    ·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
    ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
    ·Bite from tick on holiday led to death leap2008-04-11 06:49:39
    ·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
    ·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
    ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
    ·Bruno C. Malvezzi2007-07-31 21:06:47
    ·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
    ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
    ·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
    ·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
    ·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
    ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
    ·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
    ·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
    ·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
    ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
    ·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
    ·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
    ·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
    ·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
    ·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
    ·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
    ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
    ·JAMES P. KOCH2007-02-22 00:53:49
    ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
    ·Martin Frank Dumke2006-11-29 04:00:00
    ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
    ·Coen plays on without No. 1 fan2006-10-17 04:00:00
    ·Librarian was dedicated to students, family2006-09-19 17:02:58
    ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
    ·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
    ·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
    ·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
    ·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
    ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
    ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
    ·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
    ·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
    ·Tribe leader Francis mourned2006-01-14 18:22:58
    ·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
    ·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
    ·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
    ·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
    ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
    ·Passages: Pat Pepper2005-10-10 01:11:11
    ·Man loses battle with Lyme disease2005-10-09 10:37:43

    [ Read Obituaries ]

         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
    U.S. Army, 1983-1996 Lyme Disease Risk Assessments

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     Lyme Disease Advocates Say CDC Allows Questionable Group to Dictate Treatment

    Lyme In The News
    Lymeblog News
    October 20, 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News

    Atlanta, GA: The Centers for Disease and Control Prevention (CDC) group responsible for policy on Lyme disease violates federal law by extending preferential treatment to the Infectious Diseases Society of America (IDSA) says a petition created by a group of Lyme patient advocates. The petition to End Preferential Treatment of the IDSA Guidelines for Lyme Disease was filed with the CDC’s Bacterial Diseases Branch on Wednesday, October 14.

    Graphic by Alison Childs of Lymestats

    The petitioners are exercising their First Amendment right to petition the government for “a redress of grievances,” along with a more specific right added by the Administrative Procedure Act, which provides “interested persons” with the “right to petition for the issuance, amendment, or repeal of a rule.”
    "Why does the CDC, a public agency tasked with protecting the health of US taxpayers, promulgate the IDSA guidelines as policy, particularly when it can be demonstrated that the guidelines authors disallow, ignore, or reject a very large body of scientific evidence that contradicts their narrow view of this disease?"

    The petitioners claim that “because of restrictions imposed by the critically flawed IDSA guidelines promoted by CDC, thousands of chronically ill patients are harmed by misdiagnosis and denial of medically necessary treatment. CDC’s failure to provide equivalent exposure for more recent guidelines from the International Lyme and Associated Diseases Society (ILADS) compounds the harm by omitting information about evidence-based treatments that could help these severely ill patients recover from this devastating disease.”
    In addition, these advocates want to ... (Read More)

    Posted by Editor on Wednesday, October 21 @ 13:25:14 EDT (749 reads)
    Read More | 5854 bytes more | comments? | Score: 0

     ILADS treatment guidelines now on National Guidelines Clearinghouse

    Lyme In The News
    “Exclusion of patient interests and disregard for competing guidelines makes the IDSA review process untrustworthy,”
    Dr. Daniel Cameron, President of ILADS and lead author of the ILADS guidelines.

    (Bethesda, MD Sept 21, 2015) — The Centers for Disease Control and Prevention (CDC) estimates that more than 300,000 new cases of Lyme disease occur annually in the US.

    The International Lyme and Associated Diseases Society (ILADS) has criticized the Lyme guidelines review panel of the Infectious Diseases Society of America (IDSA) for excluding patient interests and disregarding competing guidelines in its review plan.

    The ILADS guidelines include share medical decision making and take patient values into consideration.

    Lorraine Johnson, JD, MBA, a coauthor and Chief Executive Officer of LymeDisease.org, said “A lot of the treatment decisions in Lyme disease depend on trade-offs. How sick is the patient, how invasive is the treatment, what is valued by the patient? Patients need to understand the risks and benefits of treatment options to make informed medical choices. These guidelines provide that information.”

    ILADS is proud to announce their guidelines are now available on the National Guidelines Clearinghouse (NGC) website.

    ILADS guidelines, Evidence Assessments and Guideline Recommendations in Lyme disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease” bring the latest scientific evidence to bear on the management of the illness.

    The National Guidelines Clearinghouse (NGC) is an initiative of the Agency for Healthcare Research and Quality (AHRQ), under the umbrella of the U.S. Department of Health and Human Services. The NGC recently adopted the Institute of Medicine (IOM) standards for developing trustworthy guidelines, which define the highest level of excellence that a guideline can achieve. Guidelines posted on the NGC website must now satisfy these standards. Thus, the inclusion of ILADS’s peer reviewed guidelines on the NGC website demonstrates that they meet the ...

    (Read More)

    Posted by Editor on Tuesday, September 22 @ 12:26:55 EDT (785 reads)
    Read More | 5689 bytes more | comments? | Score: 0

     Dr. Willy Burgdorfer Talks About Lyme Disease, Science and Corruption

    Lyme In The News
    Lymeblog News
    April 17. 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News

    "Money goes to people who have, for the past 30 years, produced the same thing--nothing."

    "... it's a shame that, that includes physicians who don't even have the courage to tell a patient, 'You have Lyme disease and I don't know anything about it.'"

    "There are lots of physicians around who wouldn't touch a Lyme disease patient. They tell the nurse, 'You tell the guy to get out of here. I don't want to see him.'' That is shameful."

    Dr. Willy Burgdorfer gained worldwide recognition for his 1982 discovery of a tick-borne spirochete as the long-sought cause of Lyme disease and related disorders in the U.S. and Europe. The bacteria was named after him — Borrelia burgdorferi.

    Although he had been retired for over 30 years, in 2007, Andy Wilson, director of the award winning documentary "UNDER OUR SKIN", interviewed Willy Burgdorfer, Ph.D., M.D., and Scientist Emeritus at the National Institutes of Health (NIH).

    These were some of the highlights from this three-hour interview.

    Andy Wilson: What are the similarities between Borrelia burgdorferi and syphilis?

    • Dr. Burgdorfer: The Lyme disease spirochete is far more virulent than syphilis. We don't know the end yet.

      And [we] can't even make a [blood] smear with Borrelia burgdorferi and see the organism. It's there. But you don't see it. You cannot find this spirochete. Why not? 

      After all, I have a sick person here. He is ...

    (Footage from UNDER OUR SKIN, Open Eye Pictures)
    (Read More)

    Note: According to the producers of this interview:
    "Just as we began filming, there was a pounding on the door, and we found ourselves facing someone who turned out to be a top researcher at the nearby Rocky Mountain Laboratories, a biolevel-4 NIH research facility."

    "Standing on the porch, our uninvited guest said, 'I've been told that I need to supervise this interview. This comes from the highest levels. There are things that Willy can't talk about.'''

    "We were stunned. After all, Dr. Burgdorfer had been retired from the lab since 1986."

    "We were there to talk to a private citizen, about the history of a very public discovery that had put him on the short list for a Nobel Prize."

    "Earlier that year, the NIH had refused our requests to interview any of their Lyme researchers. What was going on?" 

    "Why would the NIH want to censor information about the fastest growing bug-borne disease in the United States?"

    "Fortunately, our iron-willed film director, Andy Abrahams Wilson, turned the NIH handler away, and what followed was an amazingly candid interview about Lyme disease--its dangers and its controversies."

    Posted by Editor on Friday, April 17 @ 15:39:49 EDT (1955 reads)
    Read More | 5290 bytes more | comments? | Score: 0

     Yolanda Foster and Lyme Disease

    Lyme In The News

    An article on Yolanda Foster and Lyme disease in Women's Health Magazine.

    Get the facts on the disease and how to avoid it.

    (Read More)

    Posted by Editor on Tuesday, January 27 @ 10:48:50 EST (2272 reads)
    Read More | 1670 bytes more | comments? | Score: 0

     People with Lyme: Dr. Gregory P. Bach and Debra Bach Treat Lyme Act 83 in PA

    Lyme In The NewsDr. Gregory P. Bach and Debra Bach
    Treat Lyme not the symptoms Act 83 in PA (Read More)

    Posted by Editor on Sunday, December 14 @ 06:06:43 EST (2927 reads)
    Read More | 347 bytes more | comments? | People with Lyme | Score: 0

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    The Patient Paradox: Why sexed-up medicine is bad for your health

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    Read Emmy-winner Scott Brazil dies of ALS and Lyme disease at 50 Emmy-winner Scott Brazil dies of ALS and Lyme disease at 50
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         Kym Cooper (1968-2006)
    Re: Kym Cooper - Worn down by Lyme
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    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
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    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
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         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
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