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  •      Latest Comments on News

     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by LymieLizzie
     Re: London: Lyme Disease Patients Alliance to Protest at Whitehall
    by jacqui39
     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by MacMcd
     Re: Review: The Poison Plum by Les Roberts
    by penslayer
     Re: Gary Blier of Allergy Associates under investigation
    by mtsconverter


    The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease. A never befor

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         Latest Comments to Blogs

         * From: lymielizzie
         On: 05-30-2013
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    Re: "I'm still here...."
         * From: lymielizzie
         On: 05-30-2013
          To rose1010
    Re: "Caring for an Adult Male with Neurolyme"
         * From: lymielizzie
         On: 11-29-2012
          To lymetruthseeker
    Re: "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
         * From: lymielizzie
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         * From: Carold
         On: 11-21-2012
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         * From: Carold
         On: 11-21-2012
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    Re: "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
         * From: ambitiousheart
         On: 11-01-2012
          To lymetruthseeker
    Re: "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
         * From: yandrews100
         On: 08-15-2012
          To emmers
    Re: "Fight for every step"
         * From: yandrews100
         On: 08-14-2012
          To LymieLee
    Re: "Freshly Lymed"
         * From: javajoust
         On: 07-28-2012
          To shadow
    Re: "Can someone please explain to me . . ."
    * View All
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     By: Lymielizzie
    On: 03-20-2014
       "Lizzie's Lyme Expression & Fellowship FB"
     By: JennyScott
    On: 05-27-2013
     By: JennyScott
    On: 05-27-2013
       "I'm still here...."
     By: JennyScott
    On: 05-27-2013
       "Yes, I still exist!"
     By: rose1010
    On: 02-24-2013
       "Caring for an Adult Male with Neurolyme"
     By: lymetruthseeker
    On: 09-15-2012
       "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
     By: emmers
    On: 08-20-2012
     By: yandrews100
    On: 08-14-2012
       "My daughter and Lyme"
     By: LymieLee
    On: 08-02-2012
       "Freshly Lymed"
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    Guidelines by JOSEPH J. BURRASCANO JR., M.D.
    Download PDF File
    ILADS Evidence-based Lyme Treatment Guidelines
    International Lyme and Associated Diseases Society
    Download PDF File


    ·Remembering Leslie Wermers. Seven years ago today2015-11-02 00:00:00
    ·NatCapLyme Board Member Dies from Lyme Disease at 442015-04-23 14:05:27
    ·Remembering Leslie Wermers. Six years ago today2014-11-02 00:00:00
    ·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
    ·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
    ·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
    ·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
    ·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
    ·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
    ·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
    ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
    ·Bite from tick on holiday led to death leap2008-04-11 06:49:39
    ·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
    ·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
    ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
    ·Bruno C. Malvezzi2007-07-31 21:06:47
    ·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
    ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
    ·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
    ·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
    ·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
    ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
    ·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
    ·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
    ·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
    ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
    ·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
    ·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
    ·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
    ·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
    ·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
    ·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
    ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
    ·JAMES P. KOCH2007-02-22 00:53:49
    ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
    ·Martin Frank Dumke2006-11-29 04:00:00
    ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
    ·Coen plays on without No. 1 fan2006-10-17 04:00:00
    ·Librarian was dedicated to students, family2006-09-19 17:02:58
    ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
    ·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
    ·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
    ·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
    ·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
    ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
    ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
    ·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
    ·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
    ·Tribe leader Francis mourned2006-01-14 18:22:58
    ·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
    ·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
    ·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
    ·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
    ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
    ·Passages: Pat Pepper2005-10-10 01:11:11
    ·Man loses battle with Lyme disease2005-10-09 10:37:43

    [ Read Obituaries ]

         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
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     LymeBlog News: Insurers Refuse Lyme Treatment to Save 13 Cents

    LymeBlog NewsLymeblog News
    Lexington, KY USA
    By Mac McDonald, Editor, Lymeblog News

    Massachusetts Study Shows Insurers Deny Long Term Treatment for Lyme Disease to Save 13 Cents

    Massachusetts House Bill (H.B.) 989, “An Act relative to Lyme disease treatment coverage,” sponsored by Rep. Speliotis of Danvers, was sent to the Massachusetts Center for Health Information and Analysis (CHIA) last year for review. This report was just released and the financial impact to insurers of approving long term antibiotic treatment for those with chronic Lyme disease was found to be 13 cents per policy per year.

    According to this CHIA study, Lyme disease is the most common vector-borne illness in the United States and Europe, and is transmitted to humans through tick bites.

    According to some sources at the CDC, over 300,000 people in the United States are infected with Lyme disease each year.

    The study states, "While the majority of Lyme disease patients are successfully treated with a single or double course of antibiotics, an estimated 10 to 20 percent of patients have symptoms that last months or years after antibiotic treatment, including fatigue and sleep disturbances,  muscle and joint pain, and cognitive deficits".

    That is a possible 30,000 to 60,000 people who develop the symptoms of long term, or chronic, Lyme disease. At 13 cents per patient that might mean as much as $7,800 total annual financial impact spread over all insurance carriers in the United States.

    For our readers in Europe, the United States has a healthcare system based on a free market model which allows doctors and hospitals to set their own prices for services. Likewise, even the nationally managed healthcare services called Medicaid, Medicare and the Affordable Care Act manage approval of specific treatments based on the model developed by "for profit" insurance companies. Some European national health services simply follow the model set by the United States rather than conducting their own studies to establish treatment plans.

    The treatment approved by these "for profit" insurance companies in the United States is 14 to 28 days of oral antibiotics. These companies deny the existence of long term, or chronic, Lyme disease and deny, or limit, any treatment beyond the 28 days. This is such an ingrained policy that US insurers spend hundreds of thoudsands of dollars each year to influence legislators and medical boards to make sure doctors do not deviate from this treatment modality. In some states medical boards have punished, and even revoked the license to practice, of doctors who use long term antibiotics to treat chronic Lyme.

    This study was conducted by a government agency in the state of Massachusetts and was not funded by any insurers. If the study is to be believed, insurers in the United States have been denying the existence of chronic Lyme and the antibiotics necessary for treatment so they can save 13 cents per policy, per year.

    Posted by Editor on Saturday, May 24 @ 06:49:37 EDT (1455 reads)
    Read More | 3811 bytes more | comments? | Score: 5

     LymeBlog News: A bill that would protect doctors who treat Lyme disease long-term In NY State

    Lyme In The NewsLymeBlog News
    Lexington, KY USA
    By LymeBlog News Staff

    According to numerous reports the New York State Assembly has approved a bill that would protect doctors who treat Lyme disease on a long-term basis.

    The bill (A.7558-a/S.5520-b), sponsored by Assemblyman Fred Thiele, would protect licensed physicians who prescribe long-term antibiotics therapy to treat Lyme disease from being disciplined by the New York State Board of Professional Medical Conduct.

    According to the bill, physicians in the Hudson Valley have received disciplinary actions from the New York State Board of Professional Medical Conduct for providing treatment to patients who have shown symptoms of Lyme Disease, but whose tests have come back negative.

    Read more "Assembly OK's bill that would protect doctors who treat Lyme disease long-termBy TIFFANY BROOKS)

    Posted by Editor on Tuesday, May 20 @ 09:04:55 EDT (2253 reads)
    comments? | Score: 0

     LymeBlog News: Tom Seaver Fighting Lyme Disease

    Lyme and SportsLymeBlog News
    Lexington, KY USA
    By LymeBlog News Staff

    Tom Seaver, the legendary star of the New York Mets, is fighting Lyme disease. The condition was only made public after an apparent gaff by Seavers in June when he issued a press release congratulating Mets pitcher Johan Santana for pitching the first no-hitter in Mets history which included the statement, "I've never met Johan personally, ...". However, Seaver had previously been on air with Santana in a half hour TV special where they discussed pitching strategies. 

    "I didn't know what was happening." said Seaver, 68. But it wasn't until he forgot the name of a man who has worked at Seaver's vineyard for 7 years that Seaver's wife, Nancy Seaver, insisted that he go see a doctor.

    Seavers told Bill Madden of the New York Daily News, that after months of private denial, the scariest incident came when his head vineyard worker, who has been with him for seven years, came into the house one morning.

    “I looked at him and I didn’t know his name,” Seaver said.

    Seavers told Madden“I felt like I had the worst case of the flu every day, and then I was having trouble remembering things and making bad decisions. I was scared. I said to myself: ‘It’s like I’m getting old before my time. Why is this happening?’ I thought I’d had a stroke.”

    Comprehensive test revealed that he did not have dementia or a stroke, as he had feared, but rather Stage 3 Lyme disease. 

    Seavers had first contracted Lyme disease in 1991 while working in his garden at his residence in Connecticut. 

    Stage 3 Lyme disease, which can occur months or years after the initial infection, can result in memory loss, speech problems, sleep disorder and an overall feeling of chemical imbalance — all of which Seaver had been experiencing over the last year.

    “But once it gets into your blood system, it causes real problems,” Seaver said. “I’m taking 24 pills a day now, most of them vitamins, plus one penicillin pill to get my chemical balance back. It’s a cycle that kills off all the spirochetes that junk up your system. It’s been a slow process in which I’ll still feel like I have a bad case of the flu for days, but these past couple of weeks they’ve been less and less. I haven’t had a glass of wine or a beer in eight months and I don’t miss it."

    Posted by Editor on Thursday, July 11 @ 14:56:43 EDT (3667 reads)
    comments? | Score: 4

     LymeBlog News: Worldwide Lyme Disease Awareness Protest

    Lyme In The World

    Worldwide Lyme Disease Awareneww Protest
    From: worldwidelymediseaseprotestus.blogspot.com/
    Worldwide Lyme Disease Protest - US


    Several countries are putting together a worldwide protest for Lyme Disease Awareness. If you would like to find out more about it please click here.

    If you would like to be involved in the protest for your state please visit:

    Or click on your state:
    If your state is not listed and you would like to start an event, please contact us. 

    Over 20 Countries now involved in planning the Worldwide Lyme Disease Awareness Protest. Please stop by and like their facebook page to show your support!
    Click More to see contact info for countries ...

    Posted by Editor on Saturday, January 12 @ 21:40:29 EST (4112 reads)
    Read More | 8760 bytes more | comments? | Score: 0

     LymeBlog News: Virginia State Health Commissioner Warns of Lyme Disease

    Lyme In The News

    A NatCapLyme Bulletin

    For Virginia Health Professionals An important message for you from
    Virginia State Health Commissioner
    Karen Remley, MD, MBA, FAAP
    May 17, 2012 Dear Colleague, Wherever you practice in Virginia, you now have to assume that any patient exposed to ticks is at risk for Lyme disease and other tickborne diseases. In 2011, there were 1,023 confirmed or probable cases of Lyme disease and as you can see in the map, cases were confirmed in all regions of the state. In preparation for what may be a busy tick season this year, I am writing to build upon last year's communication and to provide you with the most current information about Lyme disease and other clinically relevant tickborne diseases in Virginia. In addition, I want to be sure you have access to helpful tickborne disease resources and recommended prevention guidance to provide your patients. READ THE FULL MESSAGE HERE: The National Capital Lyme & Tick-borne Disease Association
    P.O. Box 8211 · McLean VA 22106-8211 · Phone & Fax 703-821-8822
    natcaplyme@natcaplyme.org            http://www.natcaplyme.org National Capital Lyme Disease Association | P.O. Box 8211 | McLean, VA 22106

    Posted by Editor on Saturday, June 02 @ 12:21:51 EDT (3536 reads)
    Read More | 1632 bytes more | comments? | Score: 0

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         Kym Cooper (1968-2006)
    Re: Kym Cooper - Worn down by Lyme
    Posted by cooky (0 Replies)
    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
    Posted by elr1227 (0 Replies)
    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
    Posted by LymieLizzie (1 Reply)
    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
    Posted by KAM (0 Replies)

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         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
    U.S. Army, 1983-1996 Lyme Disease Risk Assessments

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