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  •      Latest Comments on News

     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by LymieLizzie
     Re: London: Lyme Disease Patients Alliance to Protest at Whitehall
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     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by MacMcd
     Re: Review: The Poison Plum by Les Roberts
    by penslayer
     Re: Gary Blier of Allergy Associates under investigation
    by mtsconverter


    Nature Noir: A Park Ranger's Patrol in the Sierra by Jordan Fisher Smith

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    Guidelines by JOSEPH J. BURRASCANO JR., M.D.
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    ·Remembering Leslie Wermers. Seven years ago today2015-11-02 00:00:00
    ·NatCapLyme Board Member Dies from Lyme Disease at 442015-04-23 14:05:27
    ·Remembering Leslie Wermers. Six years ago today2014-11-02 00:00:00
    ·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
    ·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
    ·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
    ·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
    ·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
    ·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
    ·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
    ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
    ·Bite from tick on holiday led to death leap2008-04-11 06:49:39
    ·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
    ·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
    ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
    ·Bruno C. Malvezzi2007-07-31 21:06:47
    ·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
    ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
    ·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
    ·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
    ·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
    ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
    ·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
    ·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
    ·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
    ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
    ·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
    ·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
    ·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
    ·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
    ·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
    ·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
    ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
    ·JAMES P. KOCH2007-02-22 00:53:49
    ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
    ·Martin Frank Dumke2006-11-29 04:00:00
    ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
    ·Coen plays on without No. 1 fan2006-10-17 04:00:00
    ·Librarian was dedicated to students, family2006-09-19 17:02:58
    ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
    ·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
    ·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
    ·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
    ·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
    ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
    ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
    ·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
    ·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
    ·Tribe leader Francis mourned2006-01-14 18:22:58
    ·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
    ·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
    ·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
    ·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
    ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
    ·Passages: Pat Pepper2005-10-10 01:11:11
    ·Man loses battle with Lyme disease2005-10-09 10:37:43

    [ Read Obituaries ]

         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
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     Opinion / Editorial: Lyme Disease and Dementia presentation by Dr Alan MacDonald

    Lyme ResearchFrom LookingAtLyme

    What causes Alzheimer's Disease or Dementia?
    Such an important question - The Alzheimer's Society estimates that there will soon be 850,000 people in Britain living with dementia, the majority of whom are wholly or partly due to Alzheimer's disease. The economic costs of this will rise to over £26 billion.

    The above Vimeo lecture from Dr Alan MacDonald details his work and modern technological developments that are able to show Borrelia infection in Alzheimer's brains. 

    Posted by Editor on Friday, January 30 @ 10:54:54 EST (3774 reads)
    Read More | 1114 bytes more | comments? | Score: 0

     Opinion / Editorial: Distinct pattern of cognitive impairment noted in study of Lyme patients

    Opinion / Editorial
    Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients Marian Rissenberg PhD & Susan Chambers MD, The Lyme Times, Vol. 20, Jan-Mar 1998, pp. 29-32
    From: Melissa Kaplan'sChronic Neuroimmune Diseases
    Information on CFS, FM, MCS, Lyme Disease, Thyroid, and more...

    Synopsis: This study demonstrates that for the majority of chronic Lyme patients with cognitive complaints, there is in fact a measurable and significant decline in intellectual acuity. The nature and severity of the cognitive impairment is such that it interferes with all aspects of normal functioning: employment, home, marriage, social interactions, and general emotional well-being.

    I. Cognitive Characteristics of Chronic Lyme Encephalopathy

    On the basis of both a formal neuropsychological study of 49 patients (APA 5/96) and on clinical observation and comprehensive neuropsychological examination of well over 100 patients, a distinct pattern of cognitive impairment occurring chronic Lyme disease can be described. These patients consistently demonstrate deficits in directed, sustained and divided attention, planning and organization of responses, temporal ordering, verbal fluency, abstract reasoning, speed of processing, and motor programming. The overall pattern of intellectual impairment is not unlike that seen with diffuse brain injury, and it most often results in some degree of work-related disability.

    Although performance is impaired on measures of cognitive functions associated with specific brain regions -- receptive and expressive language, visuospatial problem solving and memory -- the quality of performance is not suggestive of focal lesions in these areas. Rather, deficits are secondary to impairment of higher level integrative functions, likely mediated by complex neuronal systems. Specifically, the receptive language deficit is secondary to impaired auditory tracking and slowing of mental processing. The expressive language deficit is secondary to impaired word retrieval and response planning, The visuospatial problem solving deficit is secondary to impairment of mental flexibility, conceptualization and the ability to compare and contrast necessary in decision making. Finally, deficits on test of memory function are most often secondary to impairment of the encoding or initial processing of information, which depends on attention, and the retrieval of stored information. The storage of new information, or memory per se, is rarely impaired.

    This pattern suggests that cognitive dysfunction in chronic Lyme, while expressed variably across individual patients, results from a common factor -- the breakdown of diffusely represented processes involving both integration and activation, and impacting primarily on attention and reasoning. The fluctuation of impairment over short periods of time suggest that a physiologic rather than a structural mechanism is responsible.

    II. Neuropsychological deficits in chronic Lyme disease
    (A study presented at the annual meeting of The American Psychiatric Association , May 1996)

    The neuro-psychological characteristics of 49 patients with Lyme disease were examined. The study set out to answer three

    Posted by Editor on Thursday, January 24 @ 10:49:06 EST (5250 reads)
    Read More | 20188 bytes more | comments? | Score: 5

     Opinion / Editorial: Did Adam Lanza Have Lyme Disease?

    Opinion / Editorial
    A Tick-ing Time Bomb?
    Did Adam Lanza Have Lyme Disease?

    As the nation has been questioning how Adam Lanza could have committed such an unfathomable act, mental health issues have been at the forefront of the discussion. However, knowing that Newtown is located in a highly Lyme-endemic area, many in the Lyme community recognize that neurological lyme disease could be part of the answer to what led to the Connecticut shooting.

    Although most people or animals with Lyme or other tick-borne diseases are not violent, a small percentage have demonstrated violent behavior. Many may remember the chimpanzee named Travis who attacked the woman and tore off her face. That chimpanzee had Lyme disease and lived in Connecticut.

    Psychiatrist Robert Bransfield, M.D. estimates that aggressive behavior has been a significant issue for ...

    Posted by Editor on Saturday, January 12 @ 08:29:44 EST (5165 reads)
    Read More | 9525 bytes more | comments? | Score: 0

     Opinion / Editorial: Will false claims by Lyme disease associations backfire?

    Opinion / EditorialLymeBlog News
    Lexington, KY USA
    By Mac McDonald, Editor, LymeBlog News

    An anatomy of misinformation and Internet harassment by Lyme disease associations
    Although researching organizations and Action Alerts is not an easy task, we all need to check the facts before firing off phone calls, faxes and emails to politicians

    I would hope that everyone reading this article would know by now that when they receive emails containing false information that they have not really won the Nigerian Lottery, that Microsoft will not really send them thousands of dollars if they forward an email to 8 people, and that the little boy who is dying will not really receive money if they forward the email to everyone they know.  Most of these misinformation emails are familiar to all of us.  These emails are worded in such a way as to motivate the reader to action out of hope of personal gain or a desire to help someone.  The old saying is, "When something sounds too good to be true it usually is."

    Recently there has been a rash of misinformation email and Internet campaigns with various political agendas spread by persons representing major political parties.  Unlike the notices above, these email campaigns contain information meant to enrage the reader and motivate them to take action.  These online, political, misinformation campaigns often sound "too bad to be true", but they must be.  How else could someone put them on the Internet? 

    There must be laws which require that information on the Internet be factual, right?  Wouldn't someone who spread false information harm their own credibility and, therefore, hurt their own cause?

    What follows is this journalist's attempt at dissecting the anatomy of just one such case of a false information campaign: spread using the Internet to one small, special interest group of followers and resulting in well meaning people harassing politicians and spreading a false rumor to everyone they know.

    In my opinion, this particular misinformation campaign has damaged the credibility of the perpetrators rather than helping their cause.
    In the age of the Internet anyone can claim to be an authority on a subject and quickly spread false rumors to thousands of people
    I think I see a formula in most political disinformation campaigns on the Internet:

    • Step 1 of a disinformation campaign: Claim to be speaking for a large number of people.
    • Step 2 of a disinformation campaign: Issue a public statement, press release, media interview or letter that contains false, inflammatory, statements or true statements, intended to be inflammatory, which are not relevant to the subject being discussed.
    • Step 3 of a disinformation campaign: Express indignation and spread emails or Internet announcements, again with false statements or true statements which are not relevant, and ask others to join your fight and spread the word.
    • Step 4 of a disinformation campaign: Use words and terms in your documents that will incite outrage in your Internet audience with false statements or true statements which are not relevant.
    • Step 5 of a disinformation campaign: Keep your attacks simple and include very little, or no, actual explanation of your position. 
    • Step 6 of a disinformation campaign: Make it necessary for the object of your attack to make lengthy, complicated responses or explanations which most people will not understand.
    • Step 7 of a disinformation campaign: If the object of your misinformation campaign: responds, escalate your attack.  Keep repeating the false statements or true statements which are not relevant.
    We are looking at an "Action Alert" from someone claiming to represent a national organization.  If the communication contains inflammatory wording and logical accusations the reader is motivated to spread the word to everyone they know and, in the Internet age, that requires little more than clicking on FORWARD in their email program.

    If the false "Action Alert" calls for the reader to contact a politician and includes suggested wording for an email, fax, or telephone call it makes that action that much easier.  If the names, phone numbers, fax numbers, and email addresses of the politicians are included it makes it almost an effortless task on the part of the reader to take action.

    What if the false information comes from someone who claims to speak for anywhere from 4 to 35 organizations depending on to whom they are making the claim?

    SR-133 in New Jersey and Lyme disease:

    When New Jersey State Senator Christopher “Kip” Bateman (R-16) decided to sponsor a resolution to urge the Governor to encourage a private business to locate their research center, dedicated to chronic neuroendocrine immune disorders or NEIDs (Senate Resolution no. 133) in the State of New Jersey he must have thought it would be a "slam dunk".

    Senator Bateman is a conservative, “Taxpayer Champion” who does not shy away from expressing his opinion on controversial issues.  He has 15 years experience in state government.

    But this resolution should not be a controversial issue.  This should not require a lot of the Senator's time or staff resources.  After all, his co-sponsor is from the other side of the aisle, Senator Loretta Weinberg (D-37), so there should not be opposition along party lines.  There should not be any opposition from the federal government, both the National Institute of Health and the Centers for Disease Control and Prevention approve of the research center.  Patient advocate groups should be supportive, after all, the more research into their ailments the better.  Easy job, write the resolution, get it through committee and get a vote to pass it.

    Beside, this is not like a bill, this is not trying to pass a law, this is basically asking the Governor to encourage a private industry to locate in the Garden State.  It is good for the economy which is good for his constituents.

    I can only imagine the Senator's surprise when he received a letter dated October 6, 2009, from a person claiming to be the president of the "national Lyme Disease Association" (note that national is not capitalized in the letter therefore is not part of the official name of the organization).  This letter is supposedly representing the views of 35 affiliate organizations.  The letter is signed by Patricia V. Smith, President, Lyme Disease Association, Inc.
    • Step 1 of a disinformation campaign: Claim to be speaking for a large number of people.
    Smith includes a list of 33 organizations with the name of the ...

    Posted by Editor on Tuesday, December 07 @ 03:00:00 EST (7749 reads)
    Read More | 33329 bytes more | 1 comment | Score: 0

     Opinion / Editorial: NatCapLyme: Don't let IDSA be only voice at workshop!

    Lyme ResearchLymeBlog News
    Lexington, KY
    By LymeBlog News Staff

    September 23, 2010

    Dear Lyme Community:

    As you know, some Lyme advocates have chosen to pull out of the IOM Lyme Disease workshop http://www.iom.edu/Activities/Disease/TickBorne.aspx. They are legitimately concerned that the agenda is heavily biased against the patients’ interest.  We respect their concerns and their decision to pull out of the workshop.  However, upon careful consideration, we have decided to participate in the IOM workshop to represent the Lyme patient’s perspective and show support for our presenters.  While we have our own reservations, we are working hard to improve the agenda. Here are some facts and thoughts to consider in making your own decision:
    1. The IOM Lyme workshop is not a forum to debate whose science is right or wrong.  It is, rather, an assessment of the state of the science as presented from all points of view, for the purpose of determining the science and research still needed.  This workshop is not designed to draw conclusions, but to determine where future research needs to go.
    2. If Lyme patients and Lyme doctors fail to participate, the only perspective presented will be that of the IDSA.  If our Lyme doctors and advocates don’t participate, the committee can’t include them in the record and it will appear in the report as if we don’t exist or care.
    3. The IOM committee will accept comments for the record up to 3 or 4 days after the workshop.  If you don’t know what was said at the workshop, you cannot draw intelligent comments.
    4. Clinicians will have a microphone reserved solely for their use, with extra time allocated to their questions or comments which will be included in the final report. Lyme doctor participation is critical or the IDSA clinicians will be the only ones at the microphone and on record.
    5. A Congressman worked hard for the appropriation to fund this project. Abandoning this workshop is abandoning him, and will compromise his future ability to argue successfully for Lyme patients in Congress. This Representative needs Lyme community support at this workshop. We cannot “burn our Congressional bridges” with the very people who are critical to our cause.
    6. When you withdraw from the Washington process, you won’t be asked back again. Each time this happens, we lose our ability to be taken seriously.  History shows that progress is made when we work within the system, not when we abandon it. Admittedly, it is by nature, a long and arduous process.
    Bottom line: the workshop will proceed with or without our community; without representation we concede to the IDSA.  We can’t let that happen!  If the situation warrants it, there will be time to write a minority report. Please attend this workshop and explain your views on the gaps in science and the research you think is needed.  For example, the gaps in diagnosis that caused your disease to go unrecognized; the lack of uniformity in approaches of the states; the problem of underreporting; the unreliability of testing and the other issues you believe should be addressed by the science.

    Thank you,
    Monte L. Skall
    Executive Director, the National Capital Lyme & Tick-Borne Disease Association
    Linda Lobes
    President, Michigan Lyme Disease Association
    Lisa Torrey
    President, National Tick-Borne Disease Advocates
    Judith Weeg
    President, Lyme Disease United Coalition
        Lyme Disease Association of Iowa
        Minnesota Lymefighter’s Advocacy
        Nebraska LDUC
        Ohio LDUC
        South Dakota LDUC
        Nevada LDUC
        Indiana LDUC
        Kansas Lymefighters, Inc.
        Oklahoma LDUC
        Washington (State) LDUC
        North Dakota LDUC
        In the Lyme Light, MN LDUC
        Wright County Minnesota LDUC
        Georgia LDUC
        Annondale MN LDUC
    Tracie Schissel
    Chairman, Minnesota Lyme Fighter’s Advocacy
    Vice President, Lyme Disease United Coalition
    Tina J. Garcia
    Founder, Lyme Education Awareness Program

    Mac McDonald
    Editor, LymeBlog News

    Note: By the Editor
    • This letter is regarding the: Lyme Disease and Other Tick-Borne Diseases: The State of Science

    • Activity Description
    • At the request of the NIH, National Institute of Allergy and Infectious Diseases, the IOM will convene a committee to plan and conduct a scientific workshop to assess the state of the science of Lyme and other tick-borne diseases. The workshop will represent the broad spectrum of scientific views on Lyme disease and should provide a forum for public participation and input from individuals with Lyme disease as requested in congressional appropriations report language in House Committee Report 111-120 and Senate Committee Report 111-66. The product to be delivered will be a committee authored meeting summary that highlights workshop presentations and discussions.

    Posted by Editor on Friday, September 24 @ 13:05:48 EDT (3665 reads)
    Read More | 5482 bytes more | comments? | Score: 0

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