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  •      Latest Comments on News

     Re: Lyme Researcher Lisa Masterson arrested
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     Re: Emmy-winner Scott Brazil dies of ALS and Lyme disease at 50
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     Re: Review: The Poison Plum by Les Roberts
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         The Bakers Dozen & the Lunatic Fringe
    The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


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         DIAGNOSIS AND TREATMENT GUIDLINES
    ADVANCED TOPICS IN LYME DISEASE
    Guidelines by JOSEPH J. BURRASCANO JR., M.D.
    Download PDF File
    *************
    ILADS Evidence-based Lyme Treatment Guidelines
    International Lyme and Associated Diseases Society
    Download PDF File

         Translate

         Obituaries
    ·Remembering Leslie Wermers. Six years ago today2014-11-02 00:00:00
    ·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
    ·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
    ·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
    ·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
    ·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
    ·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
    ·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
    ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
    ·Bite from tick on holiday led to death leap2008-04-11 06:49:39
    ·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
    ·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
    ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
    ·Bruno C. Malvezzi2007-07-31 21:06:47
    ·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
    ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
    ·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
    ·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
    ·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
    ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
    ·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
    ·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
    ·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
    ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
    ·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
    ·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
    ·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
    ·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
    ·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
    ·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
    ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
    ·JAMES P. KOCH2007-02-22 00:53:49
    ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
    ·Martin Frank Dumke2006-11-29 04:00:00
    ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
    ·Coen plays on without No. 1 fan2006-10-17 04:00:00
    ·Librarian was dedicated to students, family2006-09-19 17:02:58
    ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
    ·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
    ·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
    ·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
    ·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
    ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
    ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
    ·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
    ·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
    ·Tribe leader Francis mourned2006-01-14 18:22:58
    ·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
    ·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
    ·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
    ·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
    ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
    ·Passages: Pat Pepper2005-10-10 01:11:11
    ·Man loses battle with Lyme disease2005-10-09 10:37:43

    [ Read Obituaries ]

         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
    U.S. Army, 1983-1996 Lyme Disease Risk Assessments

    Table of Contents


     Latest News: Review: The Poison Plum by Les Roberts

    Lyme In The News
    Review: The Poison Plum by Les Roberts

     

    by Lydia Niederwerfer, Lydia's Blog, Lyme-Aware.org

     

     


    LesRobertsPhoto

    Less Roberts, author of "The Poison Plum"
    I found it intriguing, imaginative and worth reading. It held me spellbound while at the same time left me unsettled and distressed because if you take the time to do more research on the plight of those that suffer with Lyme Disease right now you will find that this book in its underlying facts is so close to true life.

    Critics and reviews have stated that Les Roberts’ book, The Poison Plumis by some too over the top in expressing the views of "fundamentalist Christians" and political enthusiasts who think outside the norm. It goes way beyond inconceivable; others had nothing but praise for the book.

     

    Originally, I had written a review that follows in the same format of others. A freak accident wiped out my entire’s week work which included the review of Les Roberts’ book. Although I feel the original review was adequate, after re-reading the reviews that were already out there, I reconsidered a different perspective from the first.

     

    PoisonPlum
    Each and every one of us has different tastes and interests when it comes to reading books. As we all have difference of opinions on how much government involvement should be allowed in our personal lives. For example, right now, those that oppose the increase of Government and want to uphold the Constitution are considered radicals and trouble makers.

     

    I love to read all types of books and watch all types of movies: suspense, thriller, autobiographies, educational, fluff, feel good, romance, comedy and spiritual. It all depends on what is happening in my own life. Books and movies are used to escape or expand on what is happening in real life. We have the choice on what we would like to read and what we would like to watch. If you don’t want to read a particular book: don’t; if you don’t agree with a particular movie: don’t watch it. End of story.

     

    Connie Strasheim did an excellent job of concisely describing The Poison Plum. “Paradoxically, life's greatest truths are often found in fiction, and nowhere has the truth about Lyme, the fastest-growing infectious disease in the United States, been so accurately revealed as in this powerful, gripping story about a congressman and his quest for justice, a woman's desire for her son's healing from Lyme disease, and the powers that oppose them.”

     

    I, too, like others was captivated and disconcerted with the underlying truth of the basis of the book. Often I found that I had to set it aside to calm down. You see, within this work of fiction, Roberts does a thorough job on intertwining fact within fiction.

     

    In the beginning, the reader is presented with the infamous works of the Government’s Tuskegee Syphilis Experiment in Alabama in the 1940’s where approximately 400 African Americans were used as human guinea pigs. Some may think, that was decades ago. Surely, the Government has come a long way since then; however, there are several concerns and conjectures on where the 2001-2002 West Nile virus became such a problem and why. If you ask those that are struggling with chronic Lyme Disease, there are those that feel the particular strain of Lyme Disease that becomes chronic is a form of a “bio warfare” defense. With all these examples, if you take the necessary time to research, you will find supporting evidence.

     

    No sooner are you shown the horrors of what the Government is capable of, then you are thrust into the present. A tragedy at the hand of a beloved, honored and Congressional Medal Honor recipient at Plum Island, one of the most inconsolable experiences that we have been exposed to over and over only to be left asking: Why?

     

    In the reader’s journey to find out, you are led through a single mother’s quest to find a cure for her son’s illness, that physician upon physician has a different idea as to what could be the problem. She then finds out that the answer may be at her job with the Government at the biological research laboratory. This thrusts her into a world of deception, government corruption, and the political injustices in search of the truth. Only to end with a major twist of turn of events.

     

    This book is not for the faint of heart or those that choose to see the world through rose-colored glasses. It is also not for those that are firm believers that the Government is only looking for the best interest of the people and has no underlying motives of its own.

     

    "... painted with imagination, clarity, intricate description and exceptional pacing--well, not only does it entertain, but it also immerses the reader in its world, captivating the soul from page one until the very end. ~ Connie Strasheim, Author/Medical Researcher of Insights Into Lyme Disease Treatment: Thirteen Lyme-Literate Health Care Practitioners Share Their Healing Strategies

     

    "This book encompasses many aspects of what is really taking place in our world and I think we need to heed the author's warnings. The Poison Plum is very well written and includes all the essential elements of a spellbinding thriller." ~ Marjorie Tietjen, Freelance investigative journalist 

     

    "This is one for the record books! This one will change the way you think, open your eyes and leave you speechless. This is one book you will never, ever forget! Les Roberts has knocked it out of the ball park with his creative genius. Get it!" ~ Laura Z.  

     




    Posted by editor on Thursday, March 24 @ 23:15:44 EDT (4297 reads)
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     Latest News: Willey crowned Miss Teen NC International

    People with LymeWAYNESVILLE — Megan Willey, Miss Teen Asheville International, was crowned Miss Teen North Carolina International on Feb. 27 at Southwest Guilford High School, High Point. She is a student at Pisgah High School, Canton, and the daughter of Wendy and Rob Willey, of Waynesville. She will compete in the Miss Teen International 2010 national competition July 22-24 in Chicago.

    The Miss Teen International system has been developed to promote today’s young women, ages 13-18, and their accomplishments. Willey was diagnosed with Lyme Disease at age seven and was paralyzed several times because of the disease. Willey credits The Clinic of Angels for saving her life.

    Learn more about Willey and her story atwww.northcarolinainternationalpageants.com. “I believe it is now my turn to use the testimony God has given me to inspire patients with any disease that no matter how hard the climb may seem, with the help of clinics such as this who provide more than treatment but hope, love, happiness, and inspiration; you too can make it to the top,” Willey said.

    For more information on Willey and her battle with Lyme Disease, visitwww.northcarolinainternationalpageants.com. Willey is available for appearances. E-mail her atmegan_willey@ymail.com


    Posted by editor on Tuesday, April 13 @ 05:00:00 EDT (2285 reads)
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     Latest News: Social Networks a Lifeline for the Chronically Ill

    People with LymeSocial Networks a Lifeline for the Chronically IllBy CLAIRE CAIN MILLERPublished: March 24, 2010A former model who is now chronically ill and struggles just to shower says the people she has met online have become her family. A quadriplegic man uses the Web to share tips on which places have the best wheelchair access, and a woman with multiple sclerosis says her regular Friday night online chats are her lifeline.

    For many people, social networks are a place for idle chatter about what they made for dinner or sharing cute pictures of their pets. But for people living with chronic diseases or disabilities, they play a more vital role.

    “It’s really literally saved my life, just to be able to connect with other people,” said Sean Fogerty, 50, who has multiple sclerosis, is recovering from brain cancer and spends an hour and a half each night talking with other patients online.

    People fighting chronic illnesses are less likely than others to have Internet access, but once online they are more likely to blog or participate in online discussions about health problems, according to a report released Wednesday by the Pew Internet and American Life Project and the California HealthCare Foundation.

    “If they can break free from the anchors holding them down, people living with chronic disease who go online are finding resources that are more useful than the rest of the population,” said Susannah Fox, associate director of digital strategy at Pew and author of the report.

    They are gathering on big patient networking sites likePatientsLikeMeHealthCentralInspireCureTogether and Alliance Health Networks, and on small sites started by patients on networks like Ning and Wetpaint.

    Sherri Connell, 46, modeled and performed in musicals until, at age 27, she learned she had multiple sclerosis and Lyme disease. She began posting her journal entries online for friends and family to read. Soon, people from all over the world were reading her Web site and telling her they had similar health problems.

    In 2008, she and her husband started a social network using Ning called My Invisible Disabilities Community. It now has 2,300 members who write about living with lupus, forthcoming operations or medical bills, for example.

    “People have good and bad days, and they don’t know a good day’s going to come Wednesday at 5 o’clock when a live support group is meeting,” Ms. Connell said. “The Internet is a great outlet for people to be honest.”

    Not surprisingly, according to Pew, Internet users with chronic illnesses are more likely than healthy people to use the Web to look for information on specific diseases, drugs, health insurance, alternative or experimental treatments and depression, anxiety or stress.

    But for them, the social aspects of the Web take on heightened importance. Particularly if they are homebound, they also look to the Web for their social lives, discussing topics unrelated to their illnesses. Some schedule times to eat dinner or watch a movie while chatting online.

    John Linna, a pastor in Neenah, Wis., did not know what a blog was when his son suggested he start one after discovering he needed to stay home on a ventilator.

    “That day my little world began to expand,” he wrote in a post last year about blogging. “Soon I had a little neighborhood. It was like stopping in for coffee every day just to see how things were going.”

    When Mr. Linna died earlier this year, people all over the Web who had never met him in person mourned the loss.

    Others use the Web to find practical tips about living with their disease or disability that doctors and family members, having not lived with it themselves, cannot provide.

    On Diabetic Connect, a diabetes social network with 140,000 members, people share recipes like low-sugar banana pudding, review products like an insulin pump belt and have discussions like a recent one started by a patient with a new diagnosis. “I don’t like to talk to my family and friends about this,” she wrote. “Honestly I feel helpless. I really just need some advice and people to talk to who might have been experiencing the same things.”

    Amy Tenderich is the community manager for Diabetic Connect and writes a blog called Diabetes Mine. “There’s no doctor in the world, unless they’ve actually lived with this thing, that can get into that nitty-gritty,” she said. “I’ve walked away from dinner parties with tears in my eyes because people just don’t understand.”

    Patients often use social networks to interact with people without worrying about the stigma of physical disabilities, said Susan Smedema, an assistant professor of rehabilitation counseling atFlorida State University who studies the psychosocial aspects of disability.

    From her home in Maine, Susan Fultz plays online games at Pogo.com and commiserates with people who are frustrated that they do not have a diagnosis for their symptoms.

    “There’s no worry of being judged or criticized, and that is something that I know a lot of us don’t get in our daily lives,” said Ms. Fultz, who has Lyme disease and psoriatic arthritis.

    Those with chronic diseases or disabilities, like all Internet users, have to be wary about sharing private health information online, particularly with anonymous users.

    Research has also shown that emotions can be contagious, said Paul Albert, digital services librarian at Weill Cornell Medical Library in New York who has researched how social networks meet the needs of patients with chronic diseases.

    “If you hang out on a message board where people are very negative, you can easily adopt a negative attitude about your disease,” he said. “On the other hand, if people are hopeful, you might be better off.”

    Some people also worry that patients might exchange erroneous medical information on the Web, he said. Yet most patient social networks make clear that the information on the site should not substitute for medical advice, and the Pew study found that just 2 percent of adults living with chronic diseases report being harmed by following medical advice found on the Internet.

    Instead, the sites are used to share information from the front lines, said Lily Vadakin, 45, who has multiple sclerosis and works as a site administrator for Disaboom, a social network for people with disabilities. For instance, she has discussed with other patients how to combat fatigue by working at home and taking vitamin supplements.


    Posted by editor on Sunday, April 11 @ 05:00:00 EDT (2535 reads)
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     Latest News: Under Our Skin

    People with LymeIn The Lyme Light
    Wednesday, Mar 31 7:30p
    at 142 Throckmorton Theatre, Mill Valley, CA
    Price: $20.00
    Phone: (415) 383-9600
    Age Suitability: None Specified
    Tags: filmlyme disease

    Crusading filmmaker Andy Abrahams Wilson discusses his award-winning documentary, Under Our Skin, and corruption in the Lyme Disease medical community. 
    Under Our Skin made this year's academy award "short list" for best documentary of 2009. 
    Andy Abrahams Wilson Founder and president of Open Eye Pictures, Andy Abrahams Wilson is a multi-award winning, Emmy-nominated producer and director of creative non-fiction films. Andy received a Ba in cultural anthropology from Northwestern University, and an Ma in visual anthropology from the University of Southern California, where he also studied at the USC School of Cinema. Andy's approach emphasizes the moving image as a way to bridge disparate parts, peoples and ideas. While his work takes on controversial themes, he uses the filmmaking process as an opportunity to encourage empathy and identification, rather than separation and polarization. His most recent production, Under Our Skin, is the recipient of six best documentary awards at international film festivals and was an Academy Award semifinalist. Andy's films have been shown on Hbo, PBS, CBC, the Showtime Networks, and in theaters and film festivals worldwide. A recipient of a Pew Charitable Trust Fellowship in Dance/Media, he has produced several award-winning films on dance or dancers, and is the two-time Grand Prize recipient at the Dance on Camera Film Festival. Andy is a former budget director of the film distribution cooperative New Day Films and member of the Academy of Television Arts & Sciences. He has received numerous foundation grants, including the California Council for the Humanities, the Nathan Cummings Foundation, the Laurance Rockefeller Foundation, the Columbia Foundation, the Wells Fargo Foundation and the Educational Foundation of America. He was recognized by the Northern California Marin Arts Council as an Outstanding Artist of the Year, and by the Academy of Motion Pictures Arts and Sciences for Outstanding Documentary Achievement. In workshops worldwide and at the renowned Esalen Institute, Andy teaches photography and video as a means of connecting to our environment and our selves. 
    A gripping tale of microbes, medicine & money, Under Our Skin exposes the hidden story of Lyme disease, one of the most controversial and fastest growing epidemics of our time. Each year, thousands go undiagnosed or misdiagnosed, often told that their symptoms are "all in their head." Following the stories of patients and physicians fighting for their lives and livelihoods, the film brings into focus a haunting picture of the health care system and a medical establishment all too willing to put profits ahead of patients. 
    Jane Ganahl has been a journalist, author, editor and arts organizer in San Francisco for more than 25 years. She is the co-founder and co-director of Litquake - the west coast's largest independent literary festival, the author of "Naked on the Page: the Misadventures of My Unmarried Midlife," and editor of the anthology, "Single Woman of a Certain Age: 28 Women Writers on the Unmarried Midlife." She has contributed essays to five other anthologies. Ganahl has also been a journalist for almost three decades, most of that time with San Francisco newspapers, covering everything from City Hall to pop culture. During her final five years at the Chronicle she penned the "Single Minded" Sunday column about the unmarried life. Jane has chaired panels at the Commonwealth Club, Book Expo America, Book Group Expo, and various other conferences. She has appeared on numerous TV programs, including "The Today Show," and innumerable radio shows, from Sirius network to NPR. Her work can now be found on Huffington Post and Match.com; she has also contributed to Harper's Bazaar, Ladies' Home Journal, Harp, Parenting, Book, Salon.com, Vanity Fair.com and Rolling Stone.com.


    Posted by editor on Friday, April 09 @ 05:00:00 EDT (2368 reads)
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     Latest News: Ben Stiller suffering from Lyme?

    People with LymeActor Ben Stiller has revealed that he could have contracted Lyme disease after he badly injured his knee during a recent trip to Mozambique. 

    Stiller, 44, who had travelled to the African country last month as part of his charity work, was left limping after he fell into a muddy ditch while walking through a village. 

    His left knee became inflamed and he visited a number of doctors to diagnose the problem, but almost a month later, medics have yet to determine the cause of his ailment, despite running numerous tests. 

    "I was in Africa about three and half weeks ago and I stepped in a ditch in Mozambique. It was a hidden ditch, I was in a village and it was full of muddy waterand I stepped in it and hyper extended my knee," the Daily Express quoted him as saying. 

    "It got stiff and worse and worse. It was painful, I couldn't really move it too much. I came back to New York, went to a doctor here, they did an MRI (scan), discovered some arthritic elements. It got worse, then I went back home to Los Angeles and went to see another doctor, apparently the best knee guy.” 

    "He looked at it and said, ''You got a lot of fluid there, we gotta drain some of the blood out.'' So he stuck a needle in and sucked out the blood. 

    "He had this look in his eye and was like, ''This isn't blood''. I said to him, ''What is it?'' and he said, ''I don''t know''. So they've been doing cultures (tests) on it, they took two more samples. 

    "They think it might have gotten infected, they're not sure," he explained. Stiller's mystery injury was so painful it almost forced him to pull out of a scheduled interview with US TV talk show host David Letterman on March 23. 

    But, after more examinations and tests, Stiller's doctors now believe he may have contracted Lyme disease, an easily treatable inflammatory illness spread through a tick bite, which is common on the East Coast of the US. 

    Stiller admits he's been experiencing ‘little night sweats’ as a result of the condition, but he's glad his medical mystery is almost solved - because it means he won't have to undergo invasive surgery. 

    "It's actually improved so much in the last 24 hours, but I almost couldn't come (to New York), I didn't get the go ahead (from doctors)... He (his doctor) sent me to a rheumatologist, an infectious rare disease guy, so they do all these tests," he told Letterman. 

    "I got this call at like two o'clock in the afternoon (on Monday). The guy said, ''Have you ever had Lyme disease?'' I said, ''No, but I was on the East Coast last summer and my son had Lyme disease''. 

    "And he said, ''Well, it's looking like it might be Lyme disease''. 

    "He was saying if it wasn't, I'd have to have an orthoscopic procedure, so if it is Lyme disease, I won't have to have the procedure done, which is great," he added.

    Posted by editor on Wednesday, April 07 @ 05:00:00 EDT (10134 reads)
    Read More... | 3275 bytes more | 4 comments | Score: 3


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    ·Chronic Lyme: More Than a Naturally Occurring Disease?
    ·A bill that would protect doctors who treat Lyme disease long-term In NY State
    ·Please View VA Senate Fights for Lyme Patients
    ·Virginia State Health Commissioner Warns of Lyme Disease
    ·Under Our Skin comes to PBS
    ·Review: The Poison Plum by Les Roberts

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    The Singing Forest by PJ Langhoff


         Old Articles
    Tuesday, May 12
    · North Dakota physicians should take Lyme disease more seriously
    Friday, August 22
    · Taking time for ticks saves dogs, owners
    Tuesday, August 12
    · Lyme disease case reported in McHenry County, Illinois
    Wednesday, August 06
    · Lyme disease cases grow in Massachusetts
    Thursday, July 31
    · Lyme Disease Hits Albemarle County, Charlottesville, VA

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         Kym Cooper (1968-2006) Comments
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