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     The Bakers Dozen & the Lunatic Fringe
The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


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     DIAGNOSIS AND TREATMENT GUIDLINES
ADVANCED TOPICS IN LYME DISEASE
Guidelines by JOSEPH J. BURRASCANO JR., M.D.
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ILADS Evidence-based Lyme Treatment Guidelines
International Lyme and Associated Diseases Society
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     Obituaries
·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
·Bite from tick on holiday led to death leap2008-04-11 06:49:39
·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
·Bruno C. Malvezzi2007-07-31 21:06:47
·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
·JAMES P. KOCH2007-02-22 00:53:49
·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
·Martin Frank Dumke2006-11-29 04:00:00
·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
·Coen plays on without No. 1 fan2006-10-17 04:00:00
·Librarian was dedicated to students, family2006-09-19 17:02:58
·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
·Tribe leader Francis mourned2006-01-14 18:22:58
·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
·Passages: Pat Pepper2005-10-10 01:11:11
·Man loses battle with Lyme disease2005-10-09 10:37:43

[ Read Obituaries ]

 People with Lyme: Lyme disease patient part of landmark case

People with LymeLyme disease patient part of landmark case
Greenwood Index Journal - Greenwood,SC
By CHRIS TRAINOR/Index-Journal staff writer

 
Photo: Staff photo by Chris Trainor

Phil Wood, right, discusses his workers’ compensation case with Greenwood attorney Bill Thomason. Wood has suffered from Lyme disease for nearly six years.
For nearly six years now, Greenwood’s Phil Wood has suffered from Lyme disease.

The trick has been in trying to get certain people � namely, his former employer’s insurance company � to believe it.

Wood was formerly a timber buyer for Canal Wood. Not surprisingly, the job often carried him into forests and other wooded areas. As is the case with anyone in that industry, coming into contact with ticks was a common occurrence.

“You can ask anyone who does it, it’s not uncommon to pull three, four, five ticks a day off yourself,” Wood said last week.

Lyme disease is ...

named for the town of Lyme, Conn., where it was first described in 1975 as an affliction of those who have been bitten by an infected black-legged tick.

The majority of U.S. cases have been reported in the northeastern states, though there have been cases in every region of the country.

However, the disease is not commonly diagnosed by doctors in South Carolina. The South Carolina Department of Health and Environmental Control has reportedly recognized only about 140 cases in the state, but Lyme advocacy groups place the number much, much higher.

Wood, who was first diagnosed with Lyme in 2003 by Charlotte specialist Joseph Jemsek after being referred by Greenwood’s Dr. David Riley, has suffered numerous physical ailments in conjunction with Lyme, including swelling, tingling and numbness of the hands, migraine headaches, dizziness, fatigue, myalgia, arthralgia, chest pain, tinnitus, nausea and fevers.

“It has completely affected my life,” said Wood, who added there have been times he has felt so ill that he didn’t even know if he would wake up the next morning. “I was a very active member of the community. And to go from that, to nothing, has been unreal. It’s tough to explain, because this disease is inside of me.”

Aside from the physical battles Wood has endured, he and his attorney, Greenwood’s Bill Thomason, have also been participating in protracted legal battles to help Wood gain the workers’ compensation and health care benefits he needs to fight the disease he contracted on his former job.

The battle essentially began in February 2005, when Canal Wood sent Wood to a doctor in Charleston for an opinion. Wood had filed for workers’ compensation benefits in December 2004.

That doctor, Ludwig Lettau, reportedly suggested -- after what Thomason referred to as a “cursory examination”-- that Wood had a sleeping disorder.

“He said there was no such thing as Lyme disease in humans in the state of South Carolina,” Wood said.

Wood was then denied further health care benefits for treatment, though he continued to work for Canal Wood, requiring the help of an assistant.

Thomason said many members of Infectious Disease Society, which aids numerous insurance companies, still do not recognize Lyme in humans in this state.

Wood later visited one of the nation’s foremost Lyme specialists, Connecticut’s Dr. Steven Phillips. Phillips, as Jemsek had done earlier, diagnosed Wood with the disease.

As it was not being covered under workers’ compensation benefits, Wood’s visit with Phillips was paid for out-of-pocket, with Wood’s church pitching in to help defray costs.

In September 2005, Wood appeared before workers’ compensation commissioner Michelle Childs. After considering evidence and deposition from several sources, Childs ruled in favor of Wood.

Canal and its insurance provider, Liberty Mutual, appealed the ruling, contending Wood wasn’t “suffering from Lyme disease or any other occupational disease by injury arising out of and in the course of his employment.”

However, Wood and Thomason kept fighting, and Childs’ ruling was upheld by an appellate panel in September 2006.

Again, Canal and Liberty Mutual appealed, and this time the case came before the Court of Common Pleas in the Eighth Judicial Circuit. Oral arguments were heard in the case May 21, 2007.

An Eighth Circuit judgment in Wood’s favor was entered June 19, 2007.

However, no workers’ compensation benefits were reportedly paid out to Wood until earlier this year. On Jan. 4 a settlement was reached that would garner Wood compensation pay dating back to his official 2007 termination from Canal to the present, plus continuing compensation.

The settlement also reportedly includes medical coverage that falls within the scope of Lyme disease symptoms.

For Wood, the ruling has come none to soon.

“Until recently, I was without (specialized) treatment for eight months,” Wood said.

Wood’s case could now be a precedent case in South Carolina in terms of workers’ compensation and Lyme disease.

Wood, who was recently featured on a regional television news broadcast, said he has received an outpouring of support and communication from others suffering from Lyme.

Wood said others struggling to receive benefits or get help for the disease should take a close look at his case.

“Use this case. Take notes and get educated,” Wood said. “It could help you bypass a whole lot of stuff I’ve had to go through. If it will help one person, we’ve helped somebody. I’ve met with many Lyme’s groups. If we can let people be aware, and help one person, that person could help someone else. That’s big for me. It’s all I’ve been living for four or five years.”

Thomason echoed those thoughts.

“This is for a positive purpose, to try and help other people,” Thomason said. “If this case can do that, I’m pleased to have been a part of it.”



 
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