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| ·Remembering Leslie Wermers. One year ago today. | 2009-11-02 20:10:50 | | ·Lyme disease patients mourn passing of well known doctor | 2009-07-01 04:00:00 | | ·All she lost: My sister's battle with Lyme disease | 2009-05-19 04:00:00 | | ·Laura Treanor, 19, Lyme disease not ruled as cause of death | 2009-05-07 04:00:00 | | ·Lila Star Smith Harms, 25, dies from complications of Lyme disease | 2009-05-05 04:00:00 | | ·Lyme Disease Patients Loses a Hero and Friend | 2008-11-16 19:57:38 | | ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 2008 | 2008-04-12 04:00:00 | | ·Bite from tick on holiday led to death leap | 2008-04-11 06:49:39 | | ·Rugby great, Mike Gregory, loses his battle with Lyme disease | 2007-11-24 23:51:00 | | ·Missouri teen, 15, dies from Ehrlichiosis | 2007-09-04 04:00:00 | | ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS | 2007-08-14 07:03:39 | | ·Bruno C. Malvezzi | 2007-07-31 21:06:47 | | ·In loving memory of Dr. Edward McNeil | 2007-07-24 19:45:00 | | ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO | 2007-05-24 04:10:00 | | ·Lyme Disease Skyrockets In Maryland | 2007-05-23 04:00:00 | | ·C. Peter Thomas, 46; Sound Engineer | 2007-05-21 04:00:00 | | ·Jimmy Duarte, gifted musician, charismatic islander, dies at 70 | 2007-05-17 15:12:03 | | ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 2007 | 2007-04-30 22:50:17 | | ·BETH'S QUEST: Family crusades against Lyme disease | 2007-04-29 04:00:00 | | ·Tick kit distribution aimed at heading off Lyme disease | 2007-04-28 12:40:00 | | ·Letter to the Editor: In Memory of Lyme Advocate ''Rose'' | 2007-04-26 11:00:03 | | ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease | 2007-04-19 18:25:19 | | ·Body of Missing Woman with Lyme Disease Found | 2007-04-14 21:46:32 | | ·Michael Coers won Pulitzer Prize | 2007-03-21 10:00:43 | | ·E STREETER IN LYME 'SUICIDE' | 2007-03-19 12:33:30 | | ·Lost to Lyme Lyme disease facts | 2007-03-19 04:00:00 | | ·Musician remembered as battler against Lyme disease | 2007-03-19 04:05:00 | | ·Maine Musician Bill Chinnock Dies | 2007-03-08 13:45:18 | | ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle | 2007-02-27 11:00:00 | | ·JAMES P. KOCH | 2007-02-22 00:53:49 | | ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies | 2006-12-26 04:00:00 | | ·Martin Frank Dumke | 2006-11-29 04:00:00 | | ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface | 2006-10-29 04:05:00 | | ·Coen plays on without No. 1 fan | 2006-10-17 04:00:00 | | ·Librarian was dedicated to students, family | 2006-09-19 17:02:58 | | ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett | 2006-09-19 13:43:35 | | ·Widow of Lyme disease victim appeals for help | 2006-09-18 22:44:57 | | ·Professor commits suicide after catching dementia from tick bite | 2006-09-17 22:17:12 | | ·Tick talk: Family blames member's death on tickborne illness | 2006-08-21 04:00:00 | | ·Death of York PA area doctor due to Lyme and ALS | 2006-04-29 20:40:02 | | ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 50 | 2006-04-22 11:37:59 | | ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story | 2006-02-05 14:08:53 | | ·Kym Cooper - Worn down by Lyme | 2006-01-22 01:56:26 | | ·Kym Cooper, 1968-2006, After long battle with Lyme disease | 2006-01-19 13:51:02 | | ·Tribe leader Francis mourned | 2006-01-14 18:22:58 | | ·Easton mourns former selectman after fatal accident | 2005-12-17 13:04:17 | | ·Educator, union leader dies from complications of Lyme disease | 2005-12-08 09:25:32 | | ·'A TERRIBLE WAY TO GO' | 2005-10-22 14:39:56 | | ·Leo Bogart, R.I.P. (1921-2005) | 2005-10-21 15:55:28 | | ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead | 2005-10-21 15:46:44 | | ·Passages: Pat Pepper | 2005-10-10 01:11:11 | | ·Man loses battle with Lyme disease | 2005-10-09 10:37:43 |
[ Read Obituaries ] | |
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 | Dr. Lesley Fein interview - Discovery Health |
r writes "Mystery Diagnosis
http://health.discovery.com/gs/convergence/mystery-diagnosis/fein.shtml
Dr. Lesley Ann Fein is a member of the Pennsylvania Lyme Society, and the Greater Hartford Lyme Disease Support and Action Group. Here, she talks about Doug Posluszny's case and why there are so many other patients who face a similar situation.
Q: Can you explain what Lyme Disease is? A: It is an infection with a bacteria which causes both infectious manifestations, as well as autoimmune manifestations. If not treated adequately it sets up a chronic fatigue-like syndrome and can mimic many other diseases.
Q: Is there a test for Lyme Disease? A: This is a diagnosis that is ultimately a clinical one, because tests are not always positive, despite the fact that there are several different tests for it.
Photo: Provided Lesley Ann Fein at the 2007 IPPY Awards
Q: How come doctors weren't able to diagnose Doug properly?
A: Doug had a symptom complex which involved multiple organ systems, and the diagnosis was ultimately made by piecing together all the parts of the puzzle. Q: What made you think that Doug's illness was Lyme Disease? A: It was a combination of the sequence of events on the history, the progression of the disease, and the final manifestations. And the 20 years of knowledge and experience. Q: What are some of its symptoms? Does everyone have the same symptoms? A: This is something we write books about. The symptoms are varied from none at the beginning to flu-like symptoms in the beginning, progressing to neurological, joint, muscle, cardiac and other symptoms 3-6 months after the bite.
Q: How come some people might not know they've ...
been bitten by a tick? Doesn't everyone get a bullseye mark? A: Less than 50 percent see the rash, because it is in hairy places like the scalp, armpit, groin and is not itchy and often very evanescent.
Q: If you think you might have Lyme Disease, what should you do? How is it treated? A: Lyme masquerades as so many other illnesses, that I have no specific advice other than keep searching if you get worse without a diagnosis. It is treated with a combination of antibiotics, agents for autoimmune disease, treatments for fibromyalgia and chronic fatigue in the appropriate circumstances, nutritional therapy, physical therapy, etc.
At 27, Doug Posluszny was having one of the best years of his life: successful, engaged to his longtime girlfriend, Michelle, and in perfect shape. But one day on the way to an appointment, everything changed. He became disoriented, started sweating profusely, and had stabbing pains in his chest and lower back. Doug rushed to an urgent care facility where the doctors told him that aside from being a little dehydrated, he was fine. But over the next few weeks, Doug quickly grew so sick he had to declare disability. After an especially painful chest pain episode, Doug was admitted into a hospital for a week of extensive testing, but still there were no answers. He returned home convinced he was dying and lost hope he'd ever be diagnosed. But a chance meeting with an old acquaintance led him to Dr. Lesley Ann Fein—who knew exactly what's wrong with him. What was wrong with Doug was Lyme Disease, a bacterial infection caused by a bite from an infected deer tick. We talked to Doug to find out how he's doing, and to his doctor, Lesley Ann Fein, to get her side of the story. Q: What were the first signs that something was not right? How did the disease progress? A: My illness started with flu-like symptoms (104 fever, muscle aches, joint pain and overall weakness). After the initial onset I was not the same—as weeks went by I was getting progressively sicker. I lost a significant amount of weight (40 pounds in a 10-12 week period), my vital organs started to become affected— intermittent irregular heartbeat, Pleurisy causing shortness of breath (lungs), encephalitis (brain inflammation). My liver, spleen and pancreas were also showing as enlarged at one point or another. There was clearly something wrong—most definitely an inflammation process was underway. Q: How do you feel the medical community handled your case? Were there certain doctors/hospitals or clinics that were more patient-friendly than others? A: I personally feel that the medical community at large failed me miserably. If I was grading our health care system as a whole I would have to give it a "D" at best. Not to say all physicians are incompetent, but the 90 percent that I had encountered left much to be desired—they seemed to be preoccupied by insurance reimbursements vs. patient care and quality of life. On the other hand there were a handful of physicians and nurses who were more patient friendly than most. They were willing to listen, although they couldn't pinpoint my actual illness. Unfortunately they were the minority. Q: How did you first meet Dr. Fein? A: I met Dr Fein through a friend of mine—he literally saved my life! Both he and his daughter had Lyme Disease as well—my symptoms along with the fact no one could help me caught his attention. He knew I was very ill and needed proper treatment sooner than later. Q: How did you feel when you found out it was Lyme Disease? A: I felt relieved—finally someone had listened to me and put all the pieces together! After many months of being misdiagnosed, misunderstood and mistreated (on all levels) I was vindicated. Many of these "doctors" were telling me it was in my head, stress-related, etc. I went back to each and every one of them with my positive results to ask them not to shun or dismiss other patients who in the future come to them with similar situations.
Note: Dr. Fein will be Sue Vogan's featured guest on In Short Order, Wednesday, July 25th, at 7:00PM EST.
You are encouraged to phone in questions or comments during this live broadcast.
The call-in hours are Wednesdays, 7PM EST. USA and Canada Toll Free Line is 1-888-762-8153 extension 897 International Callers may call 1-321-253-9667.
Listen to the worldwide show at Low Band (Dialup) Hi Band (DSL)"
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