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     The Bakers Dozen & the Lunatic Fringe
The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


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     DIAGNOSIS AND TREATMENT GUIDLINES
ADVANCED TOPICS IN LYME DISEASE
Guidelines by JOSEPH J. BURRASCANO JR., M.D.
Download PDF File
*************
ILADS Evidence-based Lyme Treatment Guidelines
International Lyme and Associated Diseases Society
Download PDF File

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     Obituaries
·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
·Bite from tick on holiday led to death leap2008-04-11 06:49:39
·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
·Bruno C. Malvezzi2007-07-31 21:06:47
·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
·JAMES P. KOCH2007-02-22 00:53:49
·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
·Martin Frank Dumke2006-11-29 04:00:00
·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
·Coen plays on without No. 1 fan2006-10-17 04:00:00
·Librarian was dedicated to students, family2006-09-19 17:02:58
·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
·Tribe leader Francis mourned2006-01-14 18:22:58
·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
·Passages: Pat Pepper2005-10-10 01:11:11
·Man loses battle with Lyme disease2005-10-09 10:37:43

[ Read Obituaries ]

     U.S. Army, 1983-1996 Lyme Disease Risk Assessments
U.S. Army, 1983-1996 Lyme Disease Risk Assessments

Table of Contents


 Philidelphia Candlelight Vigil Remembers Lives Lost to Lyme Disease

LymeBlog NewsLymeblog News
Lexington, KY USA
By Mac McDonald, Lymeblog News Editor

Philadelphia, PA – WEBWIRE – Monday, September 29, 2014


PHILADELPHIA, PA—On Friday October 10th, chronically ill Lyme disease patients and supporters from around the United States will hold a candlelight vigil to honor those who lost their lives while battling chronic Lyme disease.


The event is organized by The Mayday Project Lyme patient advocacy group. The vigil and a protest rally the following Saturday coincide with IDWeek, an annual medical conference organized by the Infectious Diseases Society of America (IDSA).


Patients are calling on IDSA to update its guidelines for diagnosis and treatment of Lyme disease to reflect the current state of science and improved standards for patient care. They believe shortcomings in IDSA’s guidelines, which are followed by physicians around the world, contribute to widespread misdiagnosis of Lyme patients and ensure that the sickest remain sick.


“I’m tired of losing my friends,” says Mayday co-founder Allison Caruana, who has lost several friends who were battling Lyme. “They were abandoned by the medical establishment and remained severely ill up until their deaths. Although Lyme may not have killed them directly, it certainly robbed them of life.”


The vigil will be held outside the Philadelphia Marriott Downtown, which is designated as the headquarters hotel for IDWeek.


A key concern of activists is the refusal of IDSA to acknowledge the existence of chronic Lyme disease and update its guidelines to reflect the fact that many patients require longer-term treatment beyond the limit of 4 to 8 weeks of antibiotics specified by the IDSA.


Kenneth Liegner, MD, who specializes in internal medicine, critical care, Lyme disease and related illnesses, suggests in a September 2010 letter to the Institute of Medicine, that the refusal to acknowledge the epidemic of chronic Lyme disease is profit driven:


“An infection that can be chronic and require a long-term treatment approach does not fit the ‘business model’ of managed care: predictable premiums, predictable costs, predictable profit,” says Liegner, who practices in Pawling, NY and has treated hundreds of patients with Lyme disease. “With managed care it became feasible to control costs by defining away the chronic infectious aspects of Lyme disease.”


Mayday co-founder Josh Cutler says: “Chronic Lyme patients, especially those who lost their lives, are casualties of unchecked conflicts of interest and medical neglect. We call on everyone concerned about this injustice to stand with us and pay tribute so their deaths and suffering are not in vain.”


The candlelight vigil will take place from 8:00pm to 10:00pm on the public sidewalks outside the Philadelphia Marriott Downtown at 1201 Market Street.


For details visit: https://www.facebook.com/events/1512505018992244


About the Mayday Project
The Mayday Project was formed by a group of volunteers who have been touched by Lyme in some way. They aim to raise awareness about chronic Lyme disease and related tick-borne illnesses. Mayday supporters advocate for more accurate tests, better guidelines, improved access to treatment, increased education for physicians, and more funding for research.


For more information visit www.themaydayproject.org.

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 Phoney Lyme Disease Doctor Arrested at Mexican Border

LymeBlog NewsLymeblog News and Information
Lexington, KY USA
By Lymeblog News Staff

SAN DIEGO, CA: According to KGTV News, San Diego, Kathleen Helms who was convicted of posing as a doctor, was rearrested last week at the San Ysidro Port of Entry when she was caught practicing medicine in Tijuana under the name assumed Sandee Boyko.

Helms, 59, was treating people she had diagnosed with Lyme disease by injecting them with bovine stem cells from Germany and charging over $30,000 for this "cure". Many of the patients did not even have Lyme disease and one almost died.

According to the FBI, Helms was first arrested in 2012 by investigators from the California Medical Board and FBI agents on state charges of practicing medicine without a license, which resulted in the infliction of great bodily injury and grand theft.

Investigation into this matter was initiated based upon complaints made to the Medical Board of California. The complaints alleged that Helms had been practicing as a doctor without a license in California and representing herself as a doctor of naturopathy with offices located in Encinitas, California, and Oak Park, Illinois. Helms operated a business called BrightHouse Wellness, located at 317 North El Camino Real, Suite 112 in Encinitas, California. Helms allegedly had been diagnosing patients with Lyme disease and advising them to undergo a treatment plan that involved the infusion of dimethyl sulfoxide (DMSO), injections of animal cells, and taking vitamins.

According to the affidavit filed in this matter, in April 2012, Helms diagnosed a patient with Lyme disease after examining a sample of blood under a microscope. Helms prescribed a treatment plan that consisted of injections of bovine stem cells from Germany and DMSO in a solvent through IV. Helms directed the patient to have a peripherally inserted central (PICC) line installed in the patient’s arm so Helms could give the DMSO treatments through IV.

Helms directed the patient to go to a hospital in Tijuana and meet with a man to have the PICC line installed. The patient agreed to pay $300 for the insertion of the PICC line and pay Helms an additional $30,000 for the treatment Helms recommended. The patient suffered multiple complications with the insertion of the PICC line and had to return to Tijuana three times to make the line functional.

The patient subsequently returned to Helms’ office, where the patient was hooked to an IV and infused with four bags of DMSO and two stem cell injections with a syringe in the stomach. This treatment session took approximately seven hours. The patient returned to Helms’ office three more times and underwent a similar regime of care that included infusions and injections. The evening of the last treatment the patient became seriously ill at home and was taken to a local emergency room and immediately placed in the Intensive Care Unit (ICU) of the medical facility. The patient was told she only had hours to live because her organs were shutting down. The patient was hospitalized a total of six weeks and then placed into a skill nursing facility and later in an assisted living ...


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 Elizabeth May’s Canadian National Lyme Disease Strategy Act Passes House

Lyme in CanadaLymeblog News
Lexington, KY USA
Lymeblog News Staff

Canada: Elizabeth May’s National Lyme Disease Strategy Act passes House of Commons

OTTAWA – Elizabeth May’s Private Members Bill, C-442, An Act respecting a Federal Framework on Lyme Disease, has passed through 3rd reading with the unanimous consent of the House of Commons. Bill C-442 will now be referred to the Senate, where it will be sponsored by Senator Janis Johnson and taken up in the fall.


First introduced in June 2012, Bill C-442 will establish a framework for collaboration between the federal, provincial and territorial Health Ministers and the medical community, along with patients and their experts, in order to promote greater awareness and prevention of Lyme disease, to address the challenges of timely diagnosis and treatment, and to push for further research.


“I am immensely thankful for the support of my colleagues on all sides of the House in helping us to pass this bill,” said the Leader of the Green Party of Canada and MP for Saanich–Gulf Islands. “Today marks an important step toward better diagnosis and treatment for Lyme disease sufferers in Canada. Lyme disease is a growing problem in this country, and we urgently need health ministers, medical experts and patient advocates working together to find solutions.”


Although it is rare for Private Member’s Bills to clear the House of Commons, Bill C-442 has received support from all parties in the House, in addition to the Canadian Medical Association, the College of Family Physicians of Canada, and the Canadian Lyme Disease Foundation.


Lyme disease is an infectious disease that is carried and transmitted by ticks. During the Health Committee’s study of Bill C-442, the Public Health Agency of Canada provided expert testimony forecasting a possible 10,000 new incidences of Lyme disease in Canada each year by 2020.


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 UK Mother is told to take her five-year-old daughter to the VET after picking up

LymeBlog News
Daily Mail
June 5, 2014
London, UK

Mother is told to take her five-year-old daughter to veterinarian after picking up a tick

Here is one to contemplate. If this doctor does not understand that ticks carry some very dangerous diseases and that doctors treat humans, veterinarians treat animals, is there a training issue at the NHS?

Paula Binns took five-year-old Lilyanna to the GP after noticing the tiny parasite on her head while she plaited her hair.

She claims that after trying to remove the tick with a tissue, a doctor at the Gill Medical Centre in Walkden, Greater Manchester,UK told her to seek advice from a veterinarian instead.

She says that she contacted a vet who said they could not help since veterinarians cannot treat humans.

A neighbour eventually removed the tick using tweezers.

Binns has lodged a formal complaint with the NHS claiming the doctor at the practice in Walkden told her to seek advice from a vet instead of treating her daughter or referring her to another doctor.

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 People don't understand lyme disease

Opinion / Editorial
LymeBlog News
Lexington, KY USA
June 1, 2014
by Julie Newland

Julie Newland
Julie Newland
Delaware, OH: I hesitated writing this. Then I realized I must. Many of you might know me or know of me. Marion (Ohio) was my home for my life. I was very active there in food drives and politics. I tried to help my town. I was energetic, happy and never still. Then one day, it began to change.

Imagine losing your balance, getting vision problems, severe joint and muscle pain, stiffness, and having tremors and twitching like mad. You also lose a lot of cognitive abilities. I went from ballroom dancing to being home and needing help within a year. I was at the top hospitals in Ohio. I saw so many neurologists, cardiologists and other doctors. No one had an answer. They had ideas, but none proved to ...

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