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  •      Latest Comments on News

     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by LymieLizzie
     Re: London: Lyme Disease Patients Alliance to Protest at Whitehall
    by jacqui39
     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by MacMcd
     Re: Review: The Poison Plum by Les Roberts
    by penslayer
     Re: Gary Blier of Allergy Associates under investigation
    by mtsconverter

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    The Adalaine Project Canada's Coast to Coast Bike Ride For Lyme Disease


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         DIAGNOSIS AND TREATMENT GUIDLINES
    ADVANCED TOPICS IN LYME DISEASE
    Guidelines by JOSEPH J. BURRASCANO JR., M.D.
    Download PDF File
    *************
    ILADS Evidence-based Lyme Treatment Guidelines
    International Lyme and Associated Diseases Society
    Download PDF File

         Translate

         Obituaries
    ·NatCapLyme Board Member Dies from Lyme Disease at 442015-04-23 14:05:27
    ·Remembering Leslie Wermers. Six years ago today2014-11-02 00:00:00
    ·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
    ·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
    ·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
    ·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
    ·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
    ·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
    ·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
    ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
    ·Bite from tick on holiday led to death leap2008-04-11 06:49:39
    ·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
    ·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
    ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
    ·Bruno C. Malvezzi2007-07-31 21:06:47
    ·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
    ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
    ·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
    ·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
    ·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
    ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
    ·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
    ·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
    ·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
    ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
    ·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
    ·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
    ·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
    ·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
    ·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
    ·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
    ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
    ·JAMES P. KOCH2007-02-22 00:53:49
    ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
    ·Martin Frank Dumke2006-11-29 04:00:00
    ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
    ·Coen plays on without No. 1 fan2006-10-17 04:00:00
    ·Librarian was dedicated to students, family2006-09-19 17:02:58
    ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
    ·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
    ·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
    ·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
    ·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
    ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
    ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
    ·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
    ·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
    ·Tribe leader Francis mourned2006-01-14 18:22:58
    ·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
    ·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
    ·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
    ·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
    ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
    ·Passages: Pat Pepper2005-10-10 01:11:11
    ·Man loses battle with Lyme disease2005-10-09 10:37:43

    [ Read Obituaries ]

         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
    U.S. Army, 1983-1996 Lyme Disease Risk Assessments

    Table of Contents


     "Get Better" A handmade movie about living with Lyme disease

    Reviews
    Lymeblog News
    My 2, 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News

    This full length, handmade, movie "Get Better" (2012, 101 minutes), is loosely based on the life experience of Emily Reach White and her father's fight with late-stage Lyme disease. The movie was the winner of the "People's Grit" Audience Favorite Indie Grits Festival 2013.


    Half of the writing/directing team is Emily Reach White who watched in silence and shame as her dad struggled with Chronic Lyme Disease for over ten years. After his death in 2007, when his heart just stopped while on a trip to Disney World ("sometime between the Light Parade but before eating Mickey Mouse Pancakes), she began to question: What makes some diseases more culturally visible, and more culturally acceptable, than others? In this TEDx talk, she explains that not all diseases are created equal.

    Watch her 17 minute TEDx Talk about why she made the movie and why people stigmatize diseases they fear and don't understand.

    Invisible Illness and Incommunicable Diseases: Emily Reach White at TEDxGreenville

    Lymeblog Movie Review of GET BETTER

    "Get Better" is the story of a young teacher name Ellie Alexander (Marisa Viola) who struggles with work, relationships and caring for her father who has a disease that is stigmatized because most people don't understand it. 

    The movie has some excellent portrayals of people in the life of a person with late stage, neurological, Lyme disease.

    The star performance is by Robert Linder as Roy Alexander, Ellie's father. Linder brings a realism and truth the part that I hope helps others see what life is like inside the mind of a person with tertiary (third and final stage) Lyme disease.

    Then there is Stu, portrayed by ...

    Posted by Editor on Saturday, May 02 @ 14:59:37 EDT (308 reads)
    Read More... | 4642 bytes more | comments? | Score: 0

     Mayday 2015 Lyme Advocates to IDSA: Focus on Care Instead of Attacks

    Demonstrations
    Lymeblog News
    My 1. 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News

    WASHINGTON, DC Friday, May 01, 2015 –For the second day, Lyme patients and supporters from around the U.S. gathered in Arlington, VA, at the Infectious Diseases Society of America (IDSA) headquarters, to call attention to the epidemic of chronic Lyme disease and to ask the question: Why does IDSA continue to fight with and vilify patients instead of producing guidelines that would enable those who are chronically ill to receive medically necessary treatment.


    The most recent incident came from IDSA spokesman and Johns Hopkins physician Paul G. Auwaerter, MD, who says patients with chronic Lyme symptoms dabble in conspiracy theories. 


    "Honest review of the worldwide peer-reviewed scientific literature reveals an abundance of evidence for the existence of chronic Lyme disease.

    The standard of care set by the IDSA 2006 Lyme disease guidelines is one of medical neglect of persons suffering from chronic Lyme disease."
    Kenneth Liegner, MD

    “When you don’t understand something,” Dr. Auwaerter said in an interview with the Allentown Morning Call, “you try to insert a framework that makes sense to you.” 


    Auwaerter and other IDSA researchers claim that there is no evidence for the existence of chronic Lyme.  


    Kenneth Liegner, MD, who specializes in internal medicine, critical care, Lyme disease and related illnesses, suggests that IDSA has neglected to consider a large body of peer-reviewed evidence that chronic Lyme exists. Liegner practices in Pawling, NY, near the epicenter of the Lyme epidemic. In a September 2010 letter to the Institute of Medicine, Liegner said:


    “Honest review of the worldwide peer-reviewed scientific literature reveals an abundance of evidence for the existence of chronic Lyme disease…The standard of care set by the IDSA 2006 Lyme disease guidelines is one of medical neglect of persons suffering from chronic Lyme disease.”


    In 2006, Connecticut Attorney General Richard Blumenthal, now a U.S. Senator (D-CT), launched an investigation of IDSA, based on allegations of abuses of ...


    Posted by Editor on Friday, May 01 @ 16:41:50 EDT (360 reads)
    Read More... | 6386 bytes more | comments? | Score: 0

     "Act Up for M.E." Demonstration In Washington, DC April 28, 2015

    Demonstrations
    Lymeblog News
    April 27. 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News


    "HHS has neglected these patients for the past three decades by withholding proper funding and excluding education about the disease in the curriculum of U.S."


    WASHINGTON, DC – Myalgic encephalomyelitis (ME) is a debilitating, neuroimmune disease affecting an estimated one million men, women and children in the U.S. It has been described as the “Hidden Plague,” “Polio-like” and a “non HIV/AIDS” disease.  Most Americans have never heard of it. Why? ME lacks prominence because the government hasn't taken this disease seriously. In the 1980s, the government renamed the disease the trivializing and belittling name "chronic fatigue syndrome." Federal research funding has been at the bottom of the barrel for decades.



    Tuesday, April 28, 2015

    10:00 am to 11:00 am
    Washington, DC in front of the Capitol

    11:15 am to 12:00 pm

    Pennsylvania Avenue in front of the White House


    For more information visit MEadvocacy.org


    A march will take place with students filling in for some of these very ill patients who cannot attend themselves. Wearing photos of real patients and carrying their biographies, students will represent patients too ill to come to DC to march on the Mall. We refuse to let them be invisible any longer. The “voice of the patient” will be heard through the students.


    The marchers will circle the Capitol grounds on the pedestrian walkway route starting at ...



    Note:

    Posted by Editor on Monday, April 27 @ 08:15:35 EDT (284 reads)
    Read More... | 4775 bytes more | comments? | Score: 0

     The Adelaine Project Cross Canada Bike Ride for Lyme Disease

    LymeBlog News
    Lymeblog News
    April 26. 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News

    ST. CATHARINES, ON - APRIL 22, 2015 – At sunrise on May 11, 2015, two Canadians will begin a 8000 km bike ride from Victoria, BC to St. John’s Newfoundland to raise money for Lyme disease research and awareness in Canada.


    “We will be riding across the country this spring to give hope to those who suffer from Lyme disease”, says 22 year old Daniel Corso.


    The ride begins in at the Terry Fox “Mile 0” mark and the goal is to complete the ride in by July 7th, 2015.




    A close friend of Corso, Adelaine, suffers from chronic Lyme disease and was the initial inspiration for the ride.

    After Corso and fellow Niagara native Tanner Cookson learned that the Canadian Health Department does not effectively diagnose or provide treatment for the thousands of Canadians infected by Lyme disease, the ride became crucial for the two Canadians.


    “For me, this ride is about spreading the word and bringing awareness to this devastating disease, which can be caused from playing in our own back yards” said Cookson.


    Corso and Cookson have been working closely with the Canadian Lyme Foundation (CanLyme), a registered charitable organization.


    “Lyme disease is a significant and growing concern for all Canadians. Ride For Lyme will ...


    (C)2014 TJ. Nohara
    Adelaine
    a 24 year old resident of southern Ontario is one of many thousands of Canadians who are immersed in the medical nightmare of chronic Lyme disease.



    Note:
    (To donate visit www.rideforlyme.ca )

    Posted by Editor on Sunday, April 26 @ 07:00:00 EDT (398 reads)
    Read More... | 3892 bytes more | comments? | Score: 0

     VIDEO: UK Vets launch Big Tick Project to track rising threat of Lyme Disease

    Pets and Ticks
    Lymeblog News
    April 25. 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News

    BRISTOL, UK - Vets across the UK are set to take part in the Big Tick Project  which will see the largest nationwide collection of ticks from dogs in a bid to help scientists track what is feared to be a growing threat to people and their dogs from tick-borne zoonotic diseases such as Lyme Disease (Borrelia).

    Singer Avril Lavigne has recently revealed she is battling Lyme Disease and has been left bedridden from the condition which she contracted after being infected by a tick bite.

    In the UK, Public Health England estimates the number of new cases each year at around 3,000 while Lyme disease charities say the figure could even be as high as 15,000 annually. However, the majority of people are unaware that this potentially debilitating condition also affects our pet dogs.


    The Big Tick Project is being supported by TV presenter, naturalist and dog lover Chris Packham, and aims to raise awareness of the risks and symptoms associated with tick-borne disease, and to educate owners how they can reduce their dog’s exposure to ticks and the diseases they carry.

    Lyme disease is caused by a bite from an infected tick. Dogs can be bitten while being taken for walks through wooded areas or parkland in both urban and ...

    Posted by Editor on Saturday, April 25 @ 17:13:49 EDT (316 reads)
    Read More... | 3319 bytes more | comments? | Score: 0


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    Lyme Rage is the true story of one family's experience with the disease. Their harrowing journey begins when nine-year old Sophie develops symptoms that their family doctor cannot explain.


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    · London: Lyme Disease Patients Alliance to Protest at Whitehall
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    · NatCapLyme Board Member Dies from Lyme Disease at 44
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    · Dr. Willy Burgdorfer Talks About Lyme Disease, Science and Corruption
    Friday, April 10
    · Teenager with Stroke Symptoms Actually Had Lyme Disease
    Wednesday, April 08
    · Climate change brings Lyme disease earlier and farther north.

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    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
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         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
    U.S. Army, 1983-1996 Lyme Disease Risk Assessments

    Table of Contents





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