"Get Better" A handmade movie about living with Lyme disease
Lymeblog News My 2, 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
This full length, handmade, movie "Get Better" (2012, 101 minutes), is loosely based on the life experience of Emily Reach White and her father's fight with late-stage Lyme disease. The movie was the winner of the "People's Grit" Audience Favorite Indie Grits Festival 2013.
Half of the writing/directing team is Emily Reach White who watched in silence and shame as her dad struggled with Chronic Lyme Disease for over ten years. After his death in 2007, when his heart just stopped while on a trip to Disney World ("sometime between the Light Parade but before eating Mickey Mouse Pancakes), she began to question: What makes some diseases more culturally visible, and more culturally acceptable, than others? In this TEDx talk, she explains that not all diseases are created equal.
Watch her 17 minute TEDx Talk about why she made the movie and why people stigmatize diseases they fear and don't understand.
Invisible Illness and Incommunicable Diseases: Emily Reach White at TEDxGreenville
Lymeblog Movie Review of GET BETTER
"Get Better" is the story of a young teacher name Ellie Alexander (Marisa Viola) who struggles with work, relationships and caring for her father who has a disease that is stigmatized because most people don't understand it.
The movie has some excellent portrayals of people in the life of a person with late stage, neurological, Lyme disease.
The star performance is by Robert Linder as Roy Alexander, Ellie's father. Linder brings a realism and truth the part that I hope helps others see what life is like inside the mind of a person with tertiary (third and final stage) Lyme disease.
Mayday 2015 Lyme Advocates to IDSA: Focus on Care Instead of Attacks
Lymeblog News My 1. 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
WASHINGTON, DC Friday, May 01, 2015 –For the second day, Lyme patients and supporters from around the U.S. gathered in Arlington, VA, at the Infectious Diseases Society of America (IDSA) headquarters, to call attention to the epidemic of chronic Lyme disease and to ask the question: Why does IDSA continue to fight with and vilify patients instead of producing guidelines that would enable those who are chronically ill to receive medically necessary treatment.
The most recent incident came from IDSA spokesman and Johns Hopkins physician Paul G. Auwaerter, MD, who says patients with chronic Lyme symptoms dabble in conspiracy theories.
"Honest review of the worldwide peer-reviewed scientific literature reveals an abundance of evidence for the existence of chronic Lyme disease.
The standard of care set by the IDSA 2006 Lyme disease guidelines is one of medical neglect of persons suffering from chronic Lyme disease."
Kenneth Liegner, MD
“When you don’t understand something,” Dr. Auwaerter said in an interview with the Allentown Morning Call, “you try to insert a framework that makes sense to you.”
Auwaerter and other IDSA researchers claim that there is no evidence for the existence of chronic Lyme.
Kenneth Liegner, MD, who specializes in internal medicine, critical care, Lyme disease and related illnesses, suggests that IDSA has neglected to consider a large body of peer-reviewed evidence that chronic Lyme exists. Liegner practices in Pawling, NY, near the epicenter of the Lyme epidemic. In a September 2010 letter to the Institute of Medicine, Liegner said:
“Honest review of the worldwide peer-reviewed scientific literature reveals an abundance of evidence for the existence of chronic Lyme disease…The standard of care set by the IDSA 2006 Lyme disease guidelines is one of medical neglect of persons suffering from chronic Lyme disease.”
In 2006, Connecticut Attorney General Richard Blumenthal, now a U.S. Senator (D-CT), launched an investigation of IDSA, based on allegations of abuses of ...
"Act Up for M.E." Demonstration In Washington, DC April 28, 2015
Lymeblog News April 27. 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
"HHS has neglected these patients for the past three decades by withholding proper funding and excluding education about the disease in the curriculum of U.S."
WASHINGTON, DC – Myalgic encephalomyelitis (ME) is a debilitating, neuroimmune disease affecting an estimated one million men, women and children in the U.S. It has been described as the “Hidden Plague,” “Polio-like” and a “non HIV/AIDS” disease. Most Americans have never heard of it. Why? ME lacks prominence because the government hasn't taken this disease seriously. In the 1980s, the government renamed the disease the trivializing and belittling name "chronic fatigue syndrome." Federal research funding has been at the bottom of the barrel for decades.
Tuesday, April 28, 2015
10:00 am to 11:00 am
Washington, DC in front of the Capitol
A march will take place with students filling in for some of these very ill patients who cannot attend themselves. Wearing photos of real patients and carrying their biographies, students will represent patients too ill to come to DC to march on the Mall. We refuse to let them be invisible any longer. The “voice of the patient” will be heard through the students.
The marchers will circle the Capitol grounds on the pedestrian walkway route starting at ...
The Adelaine Project Cross Canada Bike Ride for Lyme Disease
Lymeblog News April 26. 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
CATHARINES, ON - APRIL 22, 2015 – At sunrise on May 11, 2015, two
8000 km bike ride from
Victoria, BC to St. John’s Newfoundland
to raise money for Lyme disease research
and awareness in Canada.
will be riding across the country this spring to give hope to those
who suffer from Lyme disease”, says
22 year old Daniel Corso.
ride begins in at the Terry Fox “Mile 0” mark and the goal is to
complete the ride in by July 7th,
close friend of Corso,
Adelaine, suffers from chronic Lyme disease and was the
initial inspiration for the ride.
and fellow Niagara native Tanner Cookson learned
that the Canadian Health Department does not effectively diagnose or
provide treatment for the thousands of Canadians infected by Lyme
disease, the ride became crucial for
the two Canadians.
me, this ride is about spreading the word and bringing awareness to
this devastating disease, which can be caused from playing in our own
back yards” said Cookson.
and Cookson have been working closely with the Canadian Lyme
a registered charitable organization.
disease is a significant and growing concern for all Canadians. Ride
For Lyme will ...
(C)2014 TJ. Nohara Adelaine – a 24 year old resident of southern Ontario is one of many
thousands of Canadians who are immersed in the medical nightmare of chronic Lyme disease.
VIDEO: UK Vets launch Big Tick Project to track rising threat of Lyme Disease
Lymeblog News April 25. 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
BRISTOL, UK - Vets across the UK are set to take part in the Big Tick Project which will see the largest nationwide collection of ticks from dogs in a bid to help scientists track what is feared to be a growing threat to people and their dogs from tick-borne zoonotic diseases such as Lyme Disease (Borrelia).
Singer Avril Lavigne has recently revealed she is battling Lyme Disease and has been left bedridden from the condition which she contracted after being infected by a tick bite.
In the UK, Public Health England estimates the number of new cases each year at around 3,000 while Lyme disease charities say the figure could even be as high as 15,000 annually. However, the majority of people are unaware that this potentially debilitating condition also affects our pet dogs.
The Big Tick Project is being supported by TV presenter, naturalist and dog lover Chris Packham, and aims to raise awareness of the risks and symptoms associated with tick-borne disease, and to educate owners how they can reduce their dog’s exposure to ticks and the diseases they carry.
Lyme disease is caused by a bite from an infected tick. Dogs can be bitten while being taken for walks through wooded areas or parkland in both urban and ...
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