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  •      Latest Comments on News

     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by LymieLizzie
     Re: London: Lyme Disease Patients Alliance to Protest at Whitehall
    by jacqui39
     Re: NatCapLyme Board Member Dies from Lyme Disease at 44
    by MacMcd
     Re: Review: The Poison Plum by Les Roberts
    by penslayer
     Re: Gary Blier of Allergy Associates under investigation
    by mtsconverter

         Information

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         DIAGNOSIS AND TREATMENT GUIDLINES
    ADVANCED TOPICS IN LYME DISEASE
    Guidelines by JOSEPH J. BURRASCANO JR., M.D.
    Download PDF File
    *************
    ILADS Evidence-based Lyme Treatment Guidelines
    International Lyme and Associated Diseases Society
    Download PDF File

         Translate

         Obituaries
    ·NatCapLyme Board Member Dies from Lyme Disease at 442015-04-23 14:05:27
    ·Remembering Leslie Wermers. Six years ago today2014-11-02 00:00:00
    ·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
    ·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
    ·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
    ·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
    ·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
    ·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
    ·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
    ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
    ·Bite from tick on holiday led to death leap2008-04-11 06:49:39
    ·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
    ·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
    ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
    ·Bruno C. Malvezzi2007-07-31 21:06:47
    ·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
    ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
    ·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
    ·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
    ·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
    ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
    ·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
    ·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
    ·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
    ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
    ·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
    ·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
    ·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
    ·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
    ·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
    ·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
    ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
    ·JAMES P. KOCH2007-02-22 00:53:49
    ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
    ·Martin Frank Dumke2006-11-29 04:00:00
    ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
    ·Coen plays on without No. 1 fan2006-10-17 04:00:00
    ·Librarian was dedicated to students, family2006-09-19 17:02:58
    ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
    ·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
    ·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
    ·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
    ·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
    ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
    ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
    ·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
    ·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
    ·Tribe leader Francis mourned2006-01-14 18:22:58
    ·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
    ·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
    ·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
    ·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
    ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
    ·Passages: Pat Pepper2005-10-10 01:11:11
    ·Man loses battle with Lyme disease2005-10-09 10:37:43

    [ Read Obituaries ]

         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
    U.S. Army, 1983-1996 Lyme Disease Risk Assessments

    Table of Contents


     London Lyme Disease Protest at Department of Health Tomorrow 13 May, 2015

    Demonstrations
    Lymeblog News
    May 12. 2015
    Lexington, KY USA
    By Mac McDonald, MA, CCE
    Editor Lymeblog News

    LONDON – On May 13th 2015 Lyme disease patients will rally outside the Department of Health, Richmond House in Whitehall, London, to coincide with similar protests taking place around the world.


     UK demonstrators claim that the Department of Health are neglecting patients because they ignore the science of Lyme borreliosis.  


    They claim that the infection, which can be caught from the bite of a tick can cause serious, chronic disease and that the tests relied upon by the NHS miss many cases. As a result, patients are forced to pay for private tests and treatment or risk developing severe and chronic illness.



    Imagine if going walking, camping or fishing carried the risk of ‘catching’ Multiple Sclerosis, M.E., Parkinson’s, Arthritis, Syphilis, Alzheimer’s, Heart Failure.

    Lyme disease, caused by the bite of a tiny tick, can have symptoms similar to any of those conditions.



    The protesters claim that the infection, which can be caught from the bite of a tick can cause serious, chronic disease and that the tests relied upon by the NHS miss many cases. As a result, patients are forced to pay for private tests and treatment or risk developing severe and chronic illness.

     Protesters say that many thousands of cases have already been missed by the NHS. This is due to widespread ...


    Posted by Editor on Tuesday, May 12 @ 09:42:35 EDT (571 reads)
    Read More... | 3046 bytes more | comments? | Score: 0

     VIDEO: "Ballad of a Deer Tick" by Dr. Richard Horowitz

    Reviews
    A lighthearted look at Lyme through the eyes of Clyde

    Stop me if you have heard this one. A famous Lyme disease doctor, a famous singer with Lyme disease and a famous bass player walk into a studio ...


    Words and music, guitar and vocals by Dr. Richard Horowitz, ILADS member, who has been treating Lyme disease for over 20 years. Author of the book "Why Can't I Get Better?"

    Guitar, vocals and Hammond organ by Daryl Hall half of the duo Hall & Oats. In the fall of 2005 Hall discovered he had misdiagnosed Lyme disease and had to cancel ...

    Posted by Editor on Saturday, May 09 @ 09:16:06 EDT (684 reads)
    Read More... | 2002 bytes more | comments? | Score: 0

     "Get Better" A handmade movie about living with Lyme disease

    Reviews
    Lymeblog News
    May 2, 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News

    This full length, handmade, movie "Get Better" (2012, 101 minutes), is loosely based on the life experience of Emily Reach White and her father's fight with late-stage Lyme disease. The movie was the winner of the "People's Grit" Audience Favorite Indie Grits Festival 2013.


    Half of the writing/directing team is Emily Reach White who watched in silence and shame as her dad struggled with Chronic Lyme Disease for over ten years. After his death in 2007, when his heart just stopped while on a trip to Disney World ("sometime between the Light Parade but before eating Mickey Mouse Pancakes), she began to question: What makes some diseases more culturally visible, and more culturally acceptable, than others? In this TEDx talk, she explains that not all diseases are created equal.

    Watch her 17 minute TEDx Talk about why she made the movie and why people stigmatize diseases they fear and don't understand.

    Invisible Illness and Incommunicable Diseases: Emily Reach White at TEDxGreenville

    Lymeblog Movie Review of GET BETTER

    "Get Better" is the story of a young teacher name Ellie Alexander (Marisa Viola) who struggles with work, relationships and caring for her father who has a disease that is stigmatized because most people don't understand it. 

    The movie has some excellent portrayals of people in the life of a person with late stage, neurological, Lyme disease.

    The star performance is by Robert Linder as Roy Alexander, Ellie's father. Linder brings a realism and truth the part that I hope helps others see what life is like inside the mind of a person with tertiary (third and final stage) Lyme disease.

    Then there is Stu, portrayed by ...

    Posted by Editor on Saturday, May 02 @ 14:59:37 EDT (1513 reads)
    Read More... | 4861 bytes more | comments? | Score: 0

     Mayday 2015 Lyme Advocates to IDSA: Focus on Care Instead of Attacks

    Demonstrations
    Lymeblog News
    My 1. 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News

    WASHINGTON, DC Friday, May 01, 2015 –For the second day, Lyme patients and supporters from around the U.S. gathered in Arlington, VA, at the Infectious Diseases Society of America (IDSA) headquarters, to call attention to the epidemic of chronic Lyme disease and to ask the question: Why does IDSA continue to fight with and vilify patients instead of producing guidelines that would enable those who are chronically ill to receive medically necessary treatment.


    The most recent incident came from IDSA spokesman and Johns Hopkins physician Paul G. Auwaerter, MD, who says patients with chronic Lyme symptoms dabble in conspiracy theories. 


    "Honest review of the worldwide peer-reviewed scientific literature reveals an abundance of evidence for the existence of chronic Lyme disease.

    The standard of care set by the IDSA 2006 Lyme disease guidelines is one of medical neglect of persons suffering from chronic Lyme disease."
    Kenneth Liegner, MD

    “When you don’t understand something,” Dr. Auwaerter said in an interview with the Allentown Morning Call, “you try to insert a framework that makes sense to you.” 


    Auwaerter and other IDSA researchers claim that there is no evidence for the existence of chronic Lyme.  


    Kenneth Liegner, MD, who specializes in internal medicine, critical care, Lyme disease and related illnesses, suggests that IDSA has neglected to consider a large body of peer-reviewed evidence that chronic Lyme exists. Liegner practices in Pawling, NY, near the epicenter of the Lyme epidemic. In a September 2010 letter to the Institute of Medicine, Liegner said:


    “Honest review of the worldwide peer-reviewed scientific literature reveals an abundance of evidence for the existence of chronic Lyme disease…The standard of care set by the IDSA 2006 Lyme disease guidelines is one of medical neglect of persons suffering from chronic Lyme disease.”


    In 2006, Connecticut Attorney General Richard Blumenthal, now a U.S. Senator (D-CT), launched an investigation of IDSA, based on allegations of abuses of ...


    Posted by Editor on Friday, May 01 @ 16:41:50 EDT (1019 reads)
    Read More... | 6386 bytes more | comments? | Score: 0

     "Act Up for M.E." Demonstration In Washington, DC April 28, 2015

    Demonstrations
    Lymeblog News
    April 27. 2015
    Lexington, KY USA
    By Mac McDonald, BA, MA, CCE
    Editor Lymeblog News


    "HHS has neglected these patients for the past three decades by withholding proper funding and excluding education about the disease in the curriculum of U.S."


    WASHINGTON, DC – Myalgic encephalomyelitis (ME) is a debilitating, neuroimmune disease affecting an estimated one million men, women and children in the U.S. It has been described as the “Hidden Plague,” “Polio-like” and a “non HIV/AIDS” disease.  Most Americans have never heard of it. Why? ME lacks prominence because the government hasn't taken this disease seriously. In the 1980s, the government renamed the disease the trivializing and belittling name "chronic fatigue syndrome." Federal research funding has been at the bottom of the barrel for decades.



    Tuesday, April 28, 2015

    10:00 am to 11:00 am
    Washington, DC in front of the Capitol

    11:15 am to 12:00 pm

    Pennsylvania Avenue in front of the White House


    For more information visit MEadvocacy.org


    A march will take place with students filling in for some of these very ill patients who cannot attend themselves. Wearing photos of real patients and carrying their biographies, students will represent patients too ill to come to DC to march on the Mall. We refuse to let them be invisible any longer. The “voice of the patient” will be heard through the students.


    The marchers will circle the Capitol grounds on the pedestrian walkway route starting at ...



    Note:

    Posted by Editor on Monday, April 27 @ 08:15:35 EDT (923 reads)
    Read More... | 4775 bytes more | comments? | Score: 0


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    Lyme in Canada
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    ·Dr. Murakami ends career due to Lyme disease controversy
    ·Kindree recognized for life's work
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         Old Articles
    Sunday, April 26
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    · VIDEO: UK Vets launch Big Tick Project to track rising threat of Lyme Disease
    Friday, April 24
    · London: Lyme Disease Patients Alliance to Protest at Whitehall
    Thursday, April 23
    · NatCapLyme Board Member Dies from Lyme Disease at 44
    Friday, April 17
    · Dr. Willy Burgdorfer Talks About Lyme Disease, Science and Corruption

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         Kym Cooper (1968-2006)
    Re: Kym Cooper - Worn down by Lyme
    Posted by cooky (0 Replies)
    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
    Posted by elr1227 (0 Replies)
    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
    Posted by LymieLizzie (1 Reply)
    Re: Kym Cooper, 1968-2006, After long battle with Lyme disease
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         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
    U.S. Army, 1983-1996 Lyme Disease Risk Assessments

    Table of Contents





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