Dr. Willy Burgdorfer Talks About Lyme Disease, Science and Corruption
Lymeblog News April 17. 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
"Money goes to people who have, for the past 30 years, produced the same thing--nothing."
"... it's a shame that, that includes physicians who don't even have the courage to tell a patient, 'You have Lyme disease and I don't know anything about it.'"
"There are lots of physicians around who wouldn't touch a Lyme disease patient. They tell the nurse, 'You tell the guy to get out of here. I don't want to see him.'' That is shameful."
Dr. Willy Burgdorfer gained worldwide recognition for his 1982 discovery of a tick-borne spirochete as the long-sought cause of Lyme disease and related disorders in the U.S. and Europe. The bacteria was named after him — Borrelia burgdorferi.
Although he had been retired for over 30 years, in 2007, Andy Wilson, director of the award winning documentary "UNDER OUR SKIN", interviewed Willy Burgdorfer, Ph.D., M.D., and Scientist Emeritus at the National Institutes of Health (NIH).
These were some of the highlights from this three-hour interview.
Andy Wilson: What are the similarities between Borrelia burgdorferi and syphilis?
Dr. Burgdorfer: The Lyme disease spirochete is far more virulent than syphilis. We don't know the end yet.
And [we] can't even make a [blood] smear with Borrelia burgdorferi and see the organism. It's there. But you don't see it. You cannot find this spirochete. Why not?
Note:According to the producers of this interview: "Just as we began filming, there was a pounding on the door, and we found ourselves facing someone who turned out to be a top researcher at the nearby Rocky Mountain Laboratories, a biolevel-4 NIH research facility."
"Standing on the porch, our uninvited guest said, 'I've been told that I need to supervise this interview. This comes from the highest levels. There are things that Willy can't talk about.'''
"We were stunned. After all, Dr. Burgdorfer had been retired from the lab since 1986."
"We were there to talk to a private citizen, about the history of a very public discovery that had put him on the short list for a Nobel Prize."
"Earlier that year, the NIH had refused our requests to interview any of their Lyme researchers. What was going on?"
"Why would the NIH want to censor information about the fastest growing bug-borne disease in the United States?"
"Fortunately, our iron-willed film director, Andy Abrahams Wilson, turned the NIH handler away, and what followed was an amazingly candid interview about Lyme disease--its dangers and its controversies."
Teenager with Stroke Symptoms Actually Had Lyme Disease
Lymeblog News April 10. 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
WASHINGTON – A Swiss teenager, recently returned home from a discotheque, came to the emergency department with classic sudden symptoms of stroke, only to be diagnosed with Lyme disease. The highly unusual case presentation was published online in Annals of Emergency Medicine (“Acute Lyme Neuroborreliosis with Transient Hemiparesis and Aphasia”)
“Everything about her symptoms indicated stroke: speech deficits, poor comprehension and right-sided face and arm weakness, so we considered treating her with clot-busting drugs” said lead study author Arseny Sokolov, MD, of the Department of Clinical Neuroscience, Centre Hospitalier Universitaire Vaudois in Lausanne, Switzerland. “But a 16 year-old having a stroke, while not unheard of, would be quite rare so we looked at other possibilities and found Lyme.”
Brain imaging was not suggestive of stroke either, but revealed ...
Climate change brings Lyme disease earlier and farther north.
April 8. 2015
Lexington, KY USA
By Mac McDonald, BA, MA, CCE
Editor Lymeblog News
"If this persists, we will need to move Lyme disease Awareness Month from May to April,"
Richard Ostfeld, Cary Institute
A team of scientists analyzed 19 years of data on blacklegged ticks in the Northeast and their “host” animals. They then overlaid the results with climate data to predict what may happen in the future.
CORVALLIS, Ore. – A new study suggests that changing climate patterns may be altering the life cycles of blacklegged ticks in the northeastern United States, which could increase transmission among animals – and ultimately humans – of certain pathogens, including the bacterium that causes Lyme disease.
Lyme Patients to Stage Multiday Protest at IDSA Headquarters
Lymeblog News April 7. 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
Patients are suffering and angry about the handling of the Lyme epidemic. They want access to treatment. They want better tests. They want insurance coverage that doesn’t end when treatment fails. They want doctors to stop telling them it’s all in their heads.
U.S. rates of Lyme disease have skyrocketed in recent years with the CDC announcing in 2013 that rather than 30,000 new cases annually there are likely 300,000.
"Patients are suffering and angry about the handling of the Lyme epidemic. They want access to treatment. They want better tests. They want insurance coverage that doesn’t end when treatment fails. They want doctors to stop telling them it’s all in their heads."
The Mayday Project maintains that the IDSA’s guidelines for the diagnosis and treatment of Lyme disease harm patients who are routinely misdiagnosed and unable to obtain medically necessary treatment due to the restrictions imposed by the guidelines.
Mayday Project co-founder Josh Cutler has been fighting late-stage neurological Lyme disease for nine years. This condition affects the brain, the central nervous system, and the autonomic nervous system that regulates blood pressure and other vital functions.Cutler says, “We are uniting to demand that IDSA stop its misrepresentation of science, end its conflicts of interest, and fix its guidelines for Lyme.”
Controversy about Lyme disease has divided the medical community and led to the creation of the International Lyme and Associated Diseases Society (ILADS), which has published its own guidelines for Lyme. ILADS and IDSA guidelines differ in virtually every aspect, including the testing, diagnosis, and treatment of Lyme disease as well as the definition of Lyme disease.
IDSA states that Lyme is easy to diagnose and simple to treat with a limited course of antibiotics. According to the IDSA guidelines, chronic Lyme does not exist and long-term treatment is not warranted.ILADS argues that Lyme disease is a national health crisis of epidemic proportion that needs to be treated aggressively and often requires long-term treatment beyond the limits set by IDSA.
ILADS guidelines recognize chronic Lyme disease and recommend that the “duration of therapy be guided by clinical response, rather than by an arbitrary treatment course.”Large numbers of Lyme patients remain seriously ill despite receiving the IDSA-recommended two- to four-week course of antibiotic treatment.
A 2013 study by John Aucott of Johns Hopkins University shows that over 30 percent of patients who are diagnosed and treated in the acute stage of Lyme disease continue to ...
Avril Lavigne and Lyme disease. The struggle to educate Canadian doctors
Lymeblog News April 2. 2015 Lexington, KY USA By Mac McDonald, BA, MA, CCE Editor Lymeblog News
Canadian song writer and performer Avril Lavigne says that it took months to find a doctor who recognized her symptoms as Lyme disease.
"Lyme disease is on the rise in Canada, yet diagnostics, treatment, physician and public awareness are largely inadequate." CanLyme.com
"Certainly, as Canadian, it takes people, often, a lot longer and they (average Canadians) probable wouldn't have got it (the diagnosis) through the (Canadian Health) system just by going to the doctor." Janet Sperling,University of Alberta
WATCH ABOVE: The Canadian singer is attracting attention for announcing she has Lyme Disease. Su-Ling Goh spoke to others who are praising her honesty. (Global News, Edmonton, AB)
According to the Canadian Lyme Disease Foundation (CanLyme), many Canadians are failing to be properly diagnosed and treated for, what CanLyme says is, "an under-reported, poorly recognized serious threat to the health of Canadians, tourists, and our businesses ..."
The scope of the lack of physician awareness in Canada was made evident recently when the Canadian rock artist Avril Lavigne (30) revealed, in an interview with People Magazine, she ended up bed ridden for 5 months after the physicians she consulted in the early stages of the the disease "couldn't pinpoint exactly what was wrong with her" when she was suddenly "feeling lethargic and lightheaded".
Lavigne doesn't remember exactly when she was bitten by the tick which infected her with Lyme disease but thinks that it was some time in the spring of 2014. By the fall of that year, in October, she went to Las Vegas with the intention of celebrating her 30th birthday with some girlfriends.
"I could barely eat, and when we went to the pool, I had to leave and go lie in bed,", the normally energetic French Canadian told People Magazine, in the cover story for their April 1, 2015 issue,
She had been feeling bad for months but the doctors she consulted could not ...
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