ILADS treatment guidelines now on National Guidelines Clearinghouse
“Exclusion of patient interests and disregard for competing guidelines makes the IDSA review process untrustworthy,”
Dr. Daniel Cameron, President of ILADS and lead author of the ILADS guidelines.
(Bethesda, MD Sept 21, 2015) — The Centers for Disease Control and Prevention (CDC) estimates that more than 300,000 new cases of Lyme disease occur annually in the US.
The International Lyme and Associated Diseases Society (ILADS) has
criticized the Lyme guidelines review panel of the Infectious Diseases
Society of America (IDSA) for excluding patient interests and
disregarding competing guidelines in its review plan.
The ILADS guidelines include share medical decision making and take patient
values into consideration.
Lorraine Johnson, JD, MBA, a coauthor and
Chief Executive Officer of LymeDisease.org, said “A lot of the treatment
decisions in Lyme disease depend on trade-offs. How sick is the
patient, how invasive is the treatment, what is valued by the patient?
Patients need to understand the risks and benefits of treatment options
to make informed medical choices. These guidelines provide that
ILADS is proud to announce their guidelines are now available on the National Guidelines Clearinghouse (NGC) website.
ILADS guidelines, Evidence Assessments and Guideline Recommendations in
Lyme disease: The Clinical Management of Known Tick Bites, Erythema
Migrans Rashes and Persistent Disease” bring the latest scientific
evidence to bear on the management of the illness.
The National Guidelines Clearinghouse (NGC) is an initiative of the Agency for Healthcare Research and Quality (AHRQ), under the umbrella of the U.S. Department of Health and Human Services. The NGC recently adopted the Institute of Medicine (IOM) standards for developing trustworthy guidelines, which define the highest level of excellence that a guideline can achieve. Guidelines posted on the NGC website must now satisfy these standards. Thus, the inclusion of ILADS’s peer reviewed guidelines on the NGC website demonstrates that they meet the ...
Nominate a Doc for NATCAPLYME Scholarship LYME FUNDAMENTALS at ILADS 2015
Deadline for Nominations
Monday, September 7th
NATCAPLYME is pleased to announce a grant program for first time attending physicians to attend the upcoming ILADS Fundamentals of Lyme Disease
Nominate A Local Doctor for the ILADS CME Approved CourseNatCapLyme Scholarships Available
The National Capital Lyme and Tick-Borne
Disease Association strives to improve the quality of care for those
suffering from tick-borne illnesses by offering educational
opportunities for local health care professionals.
To advance this objective NatCapLyme will offer scholarships for medical professionals to this important CME approved course.
The Fundamentals of Diagnosing and Treating Tick-Borne Illness
course targets medical professionals who are new to treating patients
with tick borne infections, or would like a refresher course on the
fundamentals of diagnosis and treatment. This course is also an
excellent primer for nurse practitioners and physician assistants who
are practicing in the offices of Lyme literate physicians
APPLY TO NatCapLyme by e-mail to NatCapLyme@natcaplyme.org or call 703-821-8833The Deadline for your nomination isMonday, September 7th
By 2009 Angeli VanLaanenhad won 7 medals in halfpipe and slopestyle ski competitions. She had only been competing for 4 years but the fatigue and confusion she had been living with since she was a child finally became too much to "just push through". She thought everybody felt this way but events like falling asleep on a ski lift made her finally step back and seek an answer to her myriad symptoms. At age 24 she was just too tired to get out of bed, let alone compete in world class freestyle skiing events.
That is when VanLaanen took a three-year break from halfpipe skiing to treat Lyme disease, which had gone misdiagnosed for 14 years.
After 3 years of treatment and a complete change in lifestyle she came back to competitive skiing and took 2nd place in North Face Open Halfpipe, New Zealand, 2012. She kept on competing and in 2014 was a member of the U.S. Olympic Team in Sochi, Russia.
On May 13, 2015 30 year old Angeli VanLaanen announced her "official retirement from Competitive Halfpipe Skiing" on Facebook. She still skis and is an avid supporter of the Lymelight Foundation a charity whose mission is to provide grants to enable
eligible children and young adults with Lyme disease to receive proper
treatment and medication as well as raising awareness about Lyme
"Lymelight" is a 30 minute film by John Roderick of Neu Productions is a Lyme Disease awareness film that "serves as an inspirational story for those who have fought to overcome chronic illness and ...
Video: Avril Lavigne opens up about Lyme disease battle
Lymeblog News June 29, 2015
Lexington, KY USA
By Mac McDonald, MA, CCE
Editor Lymeblog News
Avril Lavigne opens up about Lyme disease battle on Good Morning America
“They would pull up their computer and be like, ‘Chronic fatigue syndrome.’ Or, ‘Why don't you try to get out of bed, Avril, and just go play the piano?’ It's like, ‘Are you depressed?’”
“I'm about halfway through my treatment,” the Canadian singer said in an interview with ABC News’ Jesse Palmer. "I'm doing a lot better. Seeing a lot of progress. ... I'm just really grateful to know that, like, I will make [a] 100 percent recovery."
After being misdiagnosed, bedridden for 5 months, told it was all in her head, and improperly treated Lavigne found a specialist who istreating her with a regime that includes antibiotics and lots of rest.
“There is hope. Lyme disease does exist. And ...
A nature-themed drama is unfolding in a corner of the UConn
Forest in Storrs. The story contains elements of surprise as well as a
glimpse of the region’s agrarian past.
Worthley, assistant extension professor, strips a shoot from a Barberry
bush, revealing a distinctive yellow interior. (Ariel Dowski '14
The protagonist in the drama is the invasive Japanese Barberry (Berberis thunbergii),
and Tom Worthley, assistant extension professor in the Department of
Extension in the College of Agriculture and Natural Resources, provides a
couple of interesting twists in the plot as he explains why eliminating
the pest will also help control the spread of the tick-borne diseases
of Lyme, granulocytic anaplasmosis, and babesiosis.
The UConn Forest as Laboratory
The forest landscape at the edge of the UConn campus
replicates that which is found throughout New England. There, Worthley,
along with colleagues Scott Williams, adjunct professor in UConn’s
Department of Natural Resources and the Environment, and Jeffrey Ward,
from the Department of Forestry and Horticulture at the Connecticut
Agricultural Experiment Station in New Haven, are studying the problems
brought about by the presence of this invasive species.
In a joint project funded in part by an innovation grant from the Natural Resources Conservation Service, part of USDA, the three researchers are attempting to find ways to return the forest ecosystem to its natural state.
Worthley reaches for a berry on a Japanese Barberry bush in the UConn
Forest near Horsebarn Hill. (Ariel Dowski '14 (CLAS)/UConn Photo)
Worthley explains that the Japanese Barberry was brought to this
country because it is an attractive, hardy plant that requires little
maintenance. It is deer-resistant and it thrives in old, abandoned farm
fields that have reverted to woods, such as those found in the UConn
Forest. For years the plant was considered to be a positive addition to
the region’s rural and urban landscape.
Worthley says Barberry was introduced to the United States
in 1875 but it wasn’t considered a problem until the 1980s, when it
began to spread and take the place of native plants. Now it is found in
31 states. Connecticut is one of 17 states where it adapted to local
conditions with such a vengeance that it is now considered invasive.
Adds Ward, “You can see how it crowds out native plants, but
it also does something else that’s not so obvious to the casual
observer. Most people are surprised to learn that earthworms aren’t
native to New England. The Barberry creates a perfect environment for
them, and then they eat the leaf litter that’s important in maintaining
healthy hydrologic conditions. These worms have big appetites and when
the litter layer gets eaten we see gullies forming, sediment washing
into streams, soil chemistry changing … all sorts of negatives that you
don’t see in a healthy forest ecosystem.”
In addition to attracting earthworms, the Barberry creates a
perfect, humid environment for ticks. Williams recites the numbers.
”When we measure the presence of ticks carrying the Lyme spirochete (Borreliaburgdorferi)
we find 120 infected ticks where Barberry is not contained, 40 ticks
per acre where Barberry is contained, and only 10 infected ticks where
there is no Barberry.”
Deer are often considered to be the prime source in
spreading Lyme disease because they act as hosts to adult ticks; however
they are not the only culprit in the forest. Since mice love the
Barberry’s habitat as much as the hungry little arachnids do, they are
an efficient vector for distributing immature ticks, those in their
nymph stage, over a wide area.
And, although the prevalence of B. burgdorferi
infection in adult ticks is twice that found in nymphs, it is estimated
that nymphs are responsible for 90 percent of human disease
transmission. This is due to their abundance, and because they feed in
the summer when people are most apt to be involved in outdoor
Putting Fire to Good Use
In order to change the dynamics, Worthley, Williams, and Ward have
launched an educational effort that includes instructions for
individuals, non-profits, and municipalities on how to get rid of the
Barberry. They have given numerous field workshops and dozens of other
consultations where they’ve discussed strategies for control, including
mechanical mowing with a drum chopper or brush saw, the use of
herbicides at appropriate levels, and the use of fire. It is the latter
approach that garners the most attention.
Ward of the Connecticut Agricultural Experiement Station demonstrates
the use of a propane torch to control Barberry. (Photo courtesy of
Prior to European settlement in North America, low-intensity
fires were a ...
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