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     The Bakers Dozen & the Lunatic Fringe
The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


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     DIAGNOSIS AND TREATMENT GUIDLINES
ADVANCED TOPICS IN LYME DISEASE
Guidelines by JOSEPH J. BURRASCANO JR., M.D.
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ILADS Evidence-based Lyme Treatment Guidelines
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     Obituaries
·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
·Bite from tick on holiday led to death leap2008-04-11 06:49:39
·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
·Bruno C. Malvezzi2007-07-31 21:06:47
·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
·JAMES P. KOCH2007-02-22 00:53:49
·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
·Martin Frank Dumke2006-11-29 04:00:00
·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
·Coen plays on without No. 1 fan2006-10-17 04:00:00
·Librarian was dedicated to students, family2006-09-19 17:02:58
·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
·Tribe leader Francis mourned2006-01-14 18:22:58
·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
·Passages: Pat Pepper2005-10-10 01:11:11
·Man loses battle with Lyme disease2005-10-09 10:37:43

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U.S. Army, 1983-1996 Lyme Disease Risk Assessments

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HHV-6 Virus and Lyme
Posted on: 05-10-2007 @ 09:25 pm

Someone recenlty asked about the HHV-6 virus. A lot of lyme patients are being tested positive for it and all lyme patients should be tested. HHV-6 is a virus in the herpes family. It is NOT the type of herpes associated with sores on mouth or sexually transmitted herpes. A lot of patients freak out when their llmds tell them they have a herpes type virus. I felt alarmed until she quickly explained to me the facts and I soon got my color back! Almost every single person on the planet has the hhv-6 virus. It usually remains latent and is not a threat. However with many chronic conditions & illnesses like lyme that tax the immune system,  it can rear its ugly head and make one feel very sick and extremely tired. It is in the same family as Mono and Epstein barr (EBV). In children it causes roseola and chicken pox. The main symptom of hhv-6 for lyme patients is extreme fatigue that can last months or even years. I have tested positive for 3 years. The last time I was tested, it was a high positive and I am currently taking an anti viral called valcyte. HHV-6 is another co-infection of lyme disease. It can go dormant for a while and return. For more information ck out immunitytoday.com


Last updated on 05-10-2007 @ 09:25 pm


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Posted Comments

Comment By: JennyScott
(Posted on 05-10-2007 @ 09:42 pm)

Comment: Now I'm confused because my LD said that both HHV6 and EBV are active in me, but she didn't name them as co-infections.  She said that they add to the fatigue and all but and has given me an antiviral and some "TransFactors" that are supposed to help support my immune system with regard to them.  I guess if something is active at the same time as the lyme ....anything could be a co-infection.  I just automatically think of babesia, bartonella, erlichiosis....but it makes sense now why it would also be classified as a co-infection.


Comment By: Lymielizzie
(Posted on 05-10-2007 @ 10:13 pm)

Comment: You are right in that it is a co-infection because it is connected with lyme, not because it came from the tick Transfer Facter is a popular treatment, just so expensive!


Comment By: gogirl
(Posted on 05-11-2007 @ 11:50 am)

Comment: O.K. so that is why I got the chicken pox in January at the age of 45! I thought it had to do with all of this. I have been exposed over and over again but with everything that was going on in my body at this time I didn't have a chance....I had a great deal of cold soars last year, and Epstein Barr. In a way I was greatful for the pox......it laid me out and forced me to get some answers so I found out I had Lyme. 


Comment By: Lymielizzie
(Posted on 05-11-2007 @ 07:51 pm)

Comment: EBV occures in conjunction with HHV-6. Also when ever ones immune system is defficient in chronic illnesses like lyme, other dormant herpe viruses can re-activate like the herpes simplex virus 2 which causes the cold sores. It appears from what you have explained, that you had a couple of latent herpe viruses re-activate. HHV-6 is an immune supressive virus. Our poor immune systems are already weak enough, to have that added on top is a physical nightmare. That explaines why so many lyme patients are chronically tired.


Comment By: tracy
(Posted on 06-26-2007 @ 09:38 pm)

Comment: Hi!  My Lyme doc said that it wouldn't make a difference to test me for HHV-6.  I have inactive (IgG EBV) along with my IgG Bartonella and Mycoplasma.

She said to her knowledge there would be no difference in tx.  I am on Colostrum, CoQ10, and a lot of other enzymes and herbs (including Cat's Claw). 

So HHV6, do you know of any specific tx?  Transfer Factor, I will look up what is in that.  It might be like what I was on before, Ag Immune.

Ok thanks guys,
Tracy


Comment By: Lymielizzie
(Posted on 06-27-2007 @ 08:04 pm)

Comment: Hi Tracy

I have had HHV6 for almost three years and the last test showed a very hagh titer. Normally it may not make much of a difference and could be treated with the supplement Transfer Factor, but the titer was so high my llmd feels it is interfering with healing the lyme. We need to "unload my immune system" That is why I am being treated for the virus, I have it bad. It must be bad because the herx from the treatment was extremely intense. My LLMD has me on 2 week increments so I don't get too sick from the herxes.


Comment By: lymielizzie
(Posted on 07-30-2011 @ 12:57 pm)

Comment: More information on co-infections.


Other Tick-Borne Diseases:

Rickettsia
Tick-Mediated Transmission of Mycoplasma
Rocky Mountain Spotted Fever
Lyme and Relapsing Fever
CDC- Southern Tick-Associated Rash Illness (STARI)
STARI- The Other Lyme Disease
Tick Borne Encephalitis
EMedicine: Q Fever
EMedicine: Colorado Tick Fever
EMedicine: Relapsing Fever
EMedicine: Rocky Mountain Spotted Fever
EMedicine: Tularemia
Crimean-Congo Hemorrhagic Fever (CCHF)
Tick Paralysis
MMWR March, 2002: Tularemia
Powassan Virus Outbreak
Can Ticks Spread Hepatitis C Virus?
Epstein Barr & Lyme
Morgellons
Encephalitis-like virus
Deer Tick Virus Transmission
Brucellosis
New Borrelia Species
Disease-Specific Diagnosis of Tickborne Coinfections
B. parkeri in Colorado
B. sinica in China
B. hermsii in California
Correlation of mollicutes and their viruses with multiple sclerosis
Spiroplasma ixodetis in Oregon Ticks


Comment By: lymielizzie
(Posted on 08-20-2011 @ 01:14 pm)

Comment: Planetthrive.com has great information on co infections. When we think of co infections we must not exclude molds and mercury toxins.

LYME & CO-INFECTIONS ON PLANET THRIVE

latest lyme news | lyme websites | support groups | treatment protocols | Ask Stephen Harrod Buhner | lyme perspectives column | Buhner herb database | buy Buhner book and herbs | Buhner interview | discussion forum | diet and nutrition | mercury poisoning | mold toxicity | yeast killers, enzymes, probiotics | herbs | disability benefits | legal services | lyme books | candida books | non-toxic home books | politics of healing books


Comment By: gogirl
(Posted on 07-21-2011 @ 01:51 am)

Comment: Thanks Lizzie. It is good to read through this. 

Surprisingly the co-infections are starting to make the news. 


Comment By: lymielizzie
(Posted on 07-23-2011 @ 01:04 am)

Comment: So much still to learn about lyme. Its all unraveling and can be very overwhelming.

I saw my Dr this week and the Q-fever is back and the titer is higher than the last time I was first diagnosed.

I had fevers in June and my thinking was babesia and it could be babesia because I was positive for that too!

Many of the co-infection symptoms are alike.

Every single infection and co-infection I mentioned I have had or do have.

I would say that the Q-fever has really surprised me the most and from what I read its another nasty bug and can go chronic.

Its also contagious from person to person when active.

I highly recommend every chronic lymie be tested for Q-fever.

I read a lot of post from lyme patients who have it.

For more information on Q-fever:

http://www.wrongdiagnosis.com/q/q_fever/intro.htm



Comment By: lymielizzie
(Posted on 07-20-2011 @ 09:00 pm)

Comment: So many more lyme related co-infections since the HHV-6 Epstein Barr days!

The list of lyme related co-infections from having lyme is growing rapidly. Anyone with lyme should be tested for all.

10 years ago LLMDs only checked for the basic lyme co's, babesia, bartenella and ehrlichia.

http://www.lymedisease.org/lyme101/coinfections/coinfection.html


HHV-6 and EBV are almost always indicated with lyme patients and can become chronic:

http://www.cdc.gov/ncidod/diseases/ebv.htm

HHV6

Human Herpes Virus #6 is a virus that infects white blood cells (not to be confused with the virus that causes cold sores) specifically T lymphocytes. It is also known to infect and destroy the cells that produce myelin, the fatty coating that surrounds and protects nerve cells. Additionally, the virus demonstrates the ability to cause disruption of the normal functioning of the human immune system. The symptoms include: mononucleosis, autoimmune disorders, and nervous system diseases.



Now not only are there other tick related bacteria and parasites, many other co-infections are being discovered and lyme patients are being tested with many having positive results.

Mycoplasma pneumonia:

http://www.lymediseaseblog.com/mycoplasma-overlooked-lyme-co-infection/


Chlamydia pneumoniae:

http://www.lymediseaseresource.com/wordpress/emerging-new-co-infection-chlamydia-pneumoniae-cpn/

CMV or Cytomegalovirus:

http://en.wikipedia.org/wiki/Cytomegalovirus


Q-Fever:

http://www.columbia-lyme.org/patients/tbd_qfever.html









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