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  •      Latest Comments on News

     Re: Lyme Researcher Lisa Masterson arrested
    by max
     Re: Emmy-winner Scott Brazil dies of ALS and Lyme disease at 50
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     Re: Emmy-winner Scott Brazil dies of ALS and Lyme disease at 50
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         The Bakers Dozen & the Lunatic Fringe
    The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


         Latest Comments to Blogs

         * From: lymielizzie
         On: 05-30-2013
          To JennyScott
    Re: "I'm still here...."
         * From: lymielizzie
         On: 05-30-2013
          To rose1010
    Re: "Caring for an Adult Male with Neurolyme"
         * From: lymielizzie
         On: 11-29-2012
          To lymetruthseeker
    Re: "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
         * From: lymielizzie
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         On: 11-21-2012
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    Re: "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
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         On: 11-01-2012
          To lymetruthseeker
    Re: "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
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         * From: yandrews100
         On: 08-14-2012
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         Latest Blogs

     By: Lymielizzie
    On: 03-20-2014
       "Lizzie's Lyme Expression & Fellowship FB"
     By: lymielizzie
    On: 03-17-2014
       "Lymie Lizzie FB Lyme Expressions & Art Family -LEAP"
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     By: JennyScott
    On: 05-27-2013
       "wHERE IS EVERYBODY?"
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    On: 05-27-2013
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     By: JennyScott
    On: 05-27-2013
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    On: 02-24-2013
       "Caring for an Adult Male with Neurolyme"
     By: lymetruthseeker
    On: 09-15-2012
       "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
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         DIAGNOSIS AND TREATMENT GUIDLINES
    ADVANCED TOPICS IN LYME DISEASE
    Guidelines by JOSEPH J. BURRASCANO JR., M.D.
    Download PDF File
    *************
    ILADS Evidence-based Lyme Treatment Guidelines
    International Lyme and Associated Diseases Society
    Download PDF File

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         Obituaries
    ·Remembering Leslie Wermers. Six years ago today2014-11-02 00:00:00
    ·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
    ·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
    ·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
    ·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
    ·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
    ·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
    ·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
    ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
    ·Bite from tick on holiday led to death leap2008-04-11 06:49:39
    ·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
    ·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
    ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
    ·Bruno C. Malvezzi2007-07-31 21:06:47
    ·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
    ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
    ·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
    ·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
    ·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
    ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
    ·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
    ·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
    ·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
    ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
    ·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
    ·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
    ·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
    ·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
    ·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
    ·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
    ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
    ·JAMES P. KOCH2007-02-22 00:53:49
    ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
    ·Martin Frank Dumke2006-11-29 04:00:00
    ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
    ·Coen plays on without No. 1 fan2006-10-17 04:00:00
    ·Librarian was dedicated to students, family2006-09-19 17:02:58
    ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
    ·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
    ·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
    ·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
    ·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
    ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
    ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
    ·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
    ·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
    ·Tribe leader Francis mourned2006-01-14 18:22:58
    ·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
    ·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
    ·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
    ·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
    ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
    ·Passages: Pat Pepper2005-10-10 01:11:11
    ·Man loses battle with Lyme disease2005-10-09 10:37:43

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         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
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    Caring for an Adult Male with Neurolyme
    Posted on: 02-24-2013 @ 10:56 am

    I have a son who is 30 and has been sick for 12 years,  Of course, psychiatry was  thought to be hte answer for too many wasted years and eventually I took him for a SPECT scan which shoed many areas of hypoperfusion.  I was told that they did not know what this was, but that his brain was lacking circulation to at least 4 lobes.  After too many tries of things that did not work, and still not having a lyme diagnossis, he wound up having hyperbaric treatments and glutathione plus various supplements that made him better than he ever was.  He had mental energy, ambition, energy, no air hunger etc.  The doctor convinced us hta gluten allergy and inflammation was the problem and he weemed to right. However, after five months of great health adn thinkiing that nightmare was over, the treatments wore off, stopped working and he reverted back to feeling brain dead, confused, rashed and peeling all over his face etc.  He had been told that it could be environmental so the doctor had suggestged that he move to Florida where he was.  Right now, I commute often back and forth from PA to Naples where he vaguely exists while we keep looking for answers.  HE had some equivocal tests, but it is hard to even get him to go to doctor appointmnets nad he seems to have given up.  I thinnk getting theh ealthiest he ever wsa and then getting so sick is causing so much depression on top of everything else. I was wanting ot connect wiht other people who have adult children sho are sick and also would like to know if anyone else has had experience with hyperbaric treatments.   Thanks,  I am so alone in this. h


    Last updated on 06-06-2014 @ 10:13 am


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    Comment By: lymielizzie
    (Posted on 05-30-2013 @ 01:37 pm)

    Comment: I am so sorry I did not see this sooner. There are Drs in PA that are lyme literate and can help your son. I hope he has found help by now but if not please send me a private message and I will help you find a good lyme literate Dr for him. I too have been sick with Lyme for 12 years and I too almost gave up but with the right help I got better. I will never been healed but I am not nearly as sick as I was. He needs to be on antibiotics for a very long time and only a Lyme literate Dr will do that. Moving to Florida would not help him I can assure you. If there is anything I can do please let me know. Lizzie



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         U.S. Army, 1983-1996 Lyme Disease Risk Assessments
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