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 Re: Lyme Researcher Lisa Masterson arrested
by max
 Re: Emmy-winner Scott Brazil dies of ALS and Lyme disease at 50
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     The Bakers Dozen & the Lunatic Fringe
The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


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     * From: lymielizzie
     On: 05-30-2013
      To JennyScott
Re: "I'm still here...."
     * From: lymielizzie
     On: 05-30-2013
      To rose1010
Re: "Caring for an Adult Male with Neurolyme"
     * From: lymielizzie
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      To lymetruthseeker
Re: "Gary Blier - ACT - Warning - FIRST HAND EXPERIENCE"
     * From: yandrews100
     On: 08-15-2012
      To emmers
Re: "Fight for every step"
     * From: yandrews100
     On: 08-14-2012
      To LymieLee
Re: "Freshly Lymed"
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 By: Lymielizzie
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 By: lymielizzie
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On: 05-27-2013
   "wHERE IS EVERYBODY?"
 By: JennyScott
On: 05-27-2013
   "I'm still here...."
 By: JennyScott
On: 05-27-2013
   "Yes, I still exist!"
 By: rose1010
On: 02-24-2013
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On: 09-15-2012
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On: 08-20-2012
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On: 08-14-2012
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     DIAGNOSIS AND TREATMENT GUIDLINES
ADVANCED TOPICS IN LYME DISEASE
Guidelines by JOSEPH J. BURRASCANO JR., M.D.
Download PDF File
*************
ILADS Evidence-based Lyme Treatment Guidelines
International Lyme and Associated Diseases Society
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     Obituaries
·Remembering Leslie Wermers. Five years ago2013-10-28 18:35:31
·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
·Bite from tick on holiday led to death leap2008-04-11 06:49:39
·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
·Bruno C. Malvezzi2007-07-31 21:06:47
·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
·JAMES P. KOCH2007-02-22 00:53:49
·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
·Martin Frank Dumke2006-11-29 04:00:00
·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
·Coen plays on without No. 1 fan2006-10-17 04:00:00
·Librarian was dedicated to students, family2006-09-19 17:02:58
·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
·Tribe leader Francis mourned2006-01-14 18:22:58
·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
·Passages: Pat Pepper2005-10-10 01:11:11
·Man loses battle with Lyme disease2005-10-09 10:37:43

[ Read Obituaries ]

     U.S. Army, 1983-1996 Lyme Disease Risk Assessments
U.S. Army, 1983-1996 Lyme Disease Risk Assessments

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Pissed.gif
Fight for every step
by: emmers
Posted on: 06-02-2012 @ 02:41 pm

I find that it's hard to get motivated to exercise when it hurts to do everything. The neuralgia, neuropathy, and joint pain let's not mention the fatigue how exhausted you feel before and after you do something. Went went for a walk/run today about 2.7miles. As I ran I could feel the burning shoot into my foot with every step onto my left foot. It hurts. The joints alternate knee, ankle, metatarsals. I take breaks walk when it gets bad try to talk myself up to try to run again. My left leg went numb from the knee down, almost felt like I needed to shake it out. I know it's good for me, but it's like the Lyme is just trying to dare you; don't do it, you can't, you won't do it. This disease breaks you down to nothing, you question everything. Am I crazy? Are the symptoms real? Is it really that hard to get myself to move? With each step I tell myself to breathe, keep moving, you're stronger than that. I might feel broken, but to be broken means to sit down again and give up. I'm fighting today. Fight with me. 


Last updated on 06-02-2012 @ 02:41 pm


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Posted Comments

Comment By: emmers
(Posted on 06-03-2012 @ 04:21 pm)

Comment: I'm fighting with you baby! Mom


Comment By: macmcd
(Posted on 06-24-2012 @ 02:17 pm)

Comment: You are not crazy. It takes a while for the correct antibiotic treatment to take effect and even then one does not get the dramatic effects we would like to see.We really do have to push ourselves harder than other people to accomplish the same goals. Exercising is important but everything is relative. You may not be able to do the things you used to. We sometimes have to set the bar lower. What is a big jump for a Lymie may seem rather unremarkable for most people. Just keep doing a little something each day.  Good luck.


Comment By: yandrews100
(Posted on 08-15-2012 @ 12:03 am)

Comment: I feel for what you are going through. My daughter who is 12 has been doing this for 3 years. It is hard because various muscles and joints bother her. Sometimes it hurts to much to walk or use her arm. It is hard because she is just a kid and does not want to feel left out. I am constantly online and researching and trying to see how many people are getting better. It is hard, but hang in there. I made a video about my daughter and posted it on youtube. Lyme patients need to spread awareness to make others aware that chronic lyme exists and more needs to be done to cure this horrible disease before it cripples more people. http://youtu.be/hG7-8VU7NmU






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