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 Re: Under Our Skin comes to PBS
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     The Bakers Dozen & the Lunatic Fringe
The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


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     DIAGNOSIS AND TREATMENT GUIDLINES
ADVANCED TOPICS IN LYME DISEASE
Guidelines by JOSEPH J. BURRASCANO JR., M.D.
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ILADS Evidence-based Lyme Treatment Guidelines
International Lyme and Associated Diseases Society
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     Obituaries
·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
·Bite from tick on holiday led to death leap2008-04-11 06:49:39
·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
·Bruno C. Malvezzi2007-07-31 21:06:47
·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
·JAMES P. KOCH2007-02-22 00:53:49
·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
·Martin Frank Dumke2006-11-29 04:00:00
·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
·Coen plays on without No. 1 fan2006-10-17 04:00:00
·Librarian was dedicated to students, family2006-09-19 17:02:58
·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
·Tribe leader Francis mourned2006-01-14 18:22:58
·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
·Passages: Pat Pepper2005-10-10 01:11:11
·Man loses battle with Lyme disease2005-10-09 10:37:43

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U.S. Army, 1983-1996 Lyme Disease Risk Assessments

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Reflection on my past 9 years.
Posted on: 03-13-2012 @ 07:01 pm

Hi im chris. im a 20 year old college student.I contracted a chronic form of Lyme Disease when i was 11 years old. i have very few memories of my childhood left. bits and pieces. little flashes hear and there. my struggle with lyme disease continues to this day. when i was 11 years old i attended a outdoor education school. i have been involved with this school for nearly 10 years. i contracted lyme disease in the couple of semesters at the school during a camping trip. sadly i do not even remember much of my battle with lyme disease in my early years. my lyme disease has caused damage to my memory. i do remember going from being a healthy 11 year old boy having the time of his life running around with friends and learning how to survive in the woods. to being a very sick 11 year old boy who had difficulty getting out of bed. i dealt with what cards i was given. one of my lowest points was when i was so weak that i was unable to walk much more then a few steps. during that time i started getting crushed with depression. i was feeling like i was letting my parents down. i was not able to help them, i needed the help. i was so weak, i was no longer strong. i was scared that i would be left like this permanently. i was scared that i wouldn't be able to run around again. i was very sick for what felt like a very long time. i began to let the lyme disease crush me. i let it not only physically weaken me but also mentally weaken me. i let it pull me into deep depression that i am still working on defeating. i have had lyme disease exposures twice. i contracted lyme again and had to undergo a second treatment. in the time since i have had lyme i have been battling up hill. i have continual difficulty with my joints. yet i am stronger then ever. mostly because fear drove me to become stronger then ever. i have continued problems with my memory. it has impacted my studies at school. i also suffer from pain of various levels every day. possibly i will suffer this for the rest of my life. In my College life lyme has also impacted my studies at school. i am however relieved that colleges are now accepting lyme disease as a medical disorder and giving accommodations. some of the accommodations are such as extra time on papers if you have difficulty typing or writing. much like i do. currently i am going to begin undergoing further tests for the possibility of having yet contracted lyme for a third time.  and possibly needing to do another round of treatment for what might be my third time having it. for those of you who do have the ability to pay to have this done. as a side treatment and preventative caution my family uses Mainly Ticks to treat our yard for ticks and fleas as well as bees.  http://www.mainelyticks.com/ .for those of you who have families and pets i would highly suggest this. 


Last updated on 03-13-2012 @ 07:01 pm


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Posted Comments

Comment By: gogirl
(Posted on 03-23-2012 @ 12:34 am)

Comment: Hi Chris,I have Lyme, and so does my 14 year old son. The remark that 'fear' drove you really got my attention. That was the case for me also. The treatments can be hard on people and I see why younger adults would not want to spend all the time and money working toward their health.....but I'm glad you have! Fear finally challenged me, too. We will continue getting better and then we can look forward to the day the doctor want us on a maintenance plan! Whoot! 


Comment By: lymielizzie
(Posted on 03-15-2012 @ 01:35 am)

Comment: Hi Chris. It always makes me sad when a young person who by all means should be in the prime of their life, enjoying it to the fullist but instead suffering the profound effects of lyme disease....and maybe even reinfected for a third time. I hope your youth helps you in your recovery but you have got to stop getting infected! I too have been reinfected 3-4 times so you need to know to be tested for babesia and bartenella too. Do you have a good lyme literate Dr?I know the depression is overwhelming. I hope you think about going to see a good counselor-psychologist and talk about what you are going through and what you have been through, having this disease for so many years can be  traumatic. For me finding a professional counselor has been one of the best decisions I made for my recovery. I hope your parents fully understand what lyme does to a person as a whole- mind, body and spirit. Have they or have you seen Under Our Skin? Its a documentary about lyme where you and your parents get a crash 101 course on lyme and the whole ugly controversy. You can watch it free on hulu.comThank you for posting Chris, hang in there. Lizzie


Comment By: chris9282
(Posted on 03-20-2012 @ 03:39 am)

Comment: Hello Lizzie, im lucky enough to have one of the leading lyme specialists who treats only lyme disease patients and those with  babesia and bartenella, he is a member of ILADS and has been practicing for over 10 years. i have been tested for all of them. :) over the years i have studied allot of what lyme is and how it effects my body. as well as talking with my doctor allot about it. i have yet to see that movie but i will watch it. thank you for your suggestion. 


Comment By: lymielizzie
(Posted on 03-20-2012 @ 09:26 pm)

Comment: You sure are lucky to have such a great LLMD to treat you. It takes most patients several years before they finally find an actual LLMD who knows what the heck they are doing.I would be interested in knowing your thoughts on Under Our Skin. Thanks, Lizzie






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