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     Latest Comments on News

 Re: Under Our Skin comes to PBS
by LymieLizzie
 Re: Under Our Skin comes to PBS
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 Re: Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story
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     The Bakers Dozen & the Lunatic Fringe
The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


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     DIAGNOSIS AND TREATMENT GUIDLINES
ADVANCED TOPICS IN LYME DISEASE
Guidelines by JOSEPH J. BURRASCANO JR., M.D.
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ILADS Evidence-based Lyme Treatment Guidelines
International Lyme and Associated Diseases Society
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     Obituaries
·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
·Bite from tick on holiday led to death leap2008-04-11 06:49:39
·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
·Bruno C. Malvezzi2007-07-31 21:06:47
·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
·JAMES P. KOCH2007-02-22 00:53:49
·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
·Martin Frank Dumke2006-11-29 04:00:00
·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
·Coen plays on without No. 1 fan2006-10-17 04:00:00
·Librarian was dedicated to students, family2006-09-19 17:02:58
·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
·Tribe leader Francis mourned2006-01-14 18:22:58
·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
·Passages: Pat Pepper2005-10-10 01:11:11
·Man loses battle with Lyme disease2005-10-09 10:37:43

[ Read Obituaries ]

     U.S. Army, 1983-1996 Lyme Disease Risk Assessments
U.S. Army, 1983-1996 Lyme Disease Risk Assessments

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DAMN MY LIFE
Posted on: 01-22-2012 @ 01:30 pm

Let me just start by saying that this is one of the most unbelievable things I could have imagined in my entire life.  I have lost EVERYTHING as a result of Lyme Disease.  Not only was I never told by a single person what can happen to you if you get bit by a lousy tick, but I had no idea about the conspiracies and medical controversy I was eventually plunged into.  Anything and everything I have ever worked for in my life was completely and totally for nothing.  I don't really care about all of this stuff about how there is no money in researching lyme because not enough people get it, about this controversy regarding whether chronic lyme exists, or what any ignorant doctor says about how you "should" be feeling.  I AM A HUMAN BEING.  I am appalled when I see a friggin commercial for cancer every 5 minutes on television, yet not one damn word is uttered by anyone on any television channel or in the general public about Lyme Disease.  Most days I just want to die, and on the days that I don't I try to figure out how I am going to deal with hundreds of symptoms for the rest of my life.  This whole thing is so out of control and ridiculous that it make me want to wring someone's neck.  I will never have a life again and what is even more comforting about knowing that is knowing that no one in the medical community is even trying to help.  FML.


Last updated on 01-22-2012 @ 01:30 pm


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Posted Comments

Comment By: lymielizzie
(Posted on 03-07-2012 @ 09:59 pm)

Comment: I hear you and understand your frustration, anger and fear. I have been battling lyme for 11 years this month (March). I never dreamed I would still be knee deep in the battle 11 years later! Your right not much on the news about lyme disease. However, the one light at the end of the tunnel is that LLMDs are now teaching other physicians about the daunting-complex realities of lyme disease as well as the best treatment options and best tests. Its a slow process getting Drs to actually want to be educated about lyme but its happening and there are now LLMDS (Lyme literate Medical Drs) in every state. If you need help finding one we can help you or you can try lymenet.org. Go to Flash Discussions and click on Find A DR. You can usually expect several options within 24-48 hours.Hang in there, LizzieBlogging here helps because this is the one place where we all feel the same way and you hopefully can find some solace in knowing your not alone in this disease and in this crazy battle to regain our lives.


Comment By: George
(Posted on 01-23-2012 @ 02:41 am)

Comment: You took the words right outa my head! I feel like I fell through the wrong rabbit hole 3 years ago and have no idea how to see my way through all this. Peace and love to you. And if that fails, a tennis raquet to a fluffy pillow!






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