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     The Bakers Dozen & the Lunatic Fringe
The Bakers Dozen & the Lunatic Fringe: Has Junk Science Shifted the Lyme Disease Paradigm? by PJ Langhoff  Includes key evidence from the historic CT Attorney General investigation into the IDSA clinical practice guidelines for Lyme disease.


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     DIAGNOSIS AND TREATMENT GUIDLINES
ADVANCED TOPICS IN LYME DISEASE
Guidelines by JOSEPH J. BURRASCANO JR., M.D.
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ILADS Evidence-based Lyme Treatment Guidelines
International Lyme and Associated Diseases Society
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     Obituaries
·Remembering Leslie Wermers. One year ago today.2009-11-02 20:10:50
·Lyme disease patients mourn passing of well known doctor2009-07-01 04:00:00
·All she lost: My sister's battle with Lyme disease2009-05-19 04:00:00
·Laura Treanor, 19, Lyme disease not ruled as cause of death2009-05-07 04:00:00
·Lila Star Smith Harms, 25, dies from complications of Lyme disease2009-05-05 04:00:00
·Lyme Disease Patients Loses a Hero and Friend2008-11-16 19:57:38
·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 20082008-04-12 04:00:00
·Bite from tick on holiday led to death leap2008-04-11 06:49:39
·Rugby great, Mike Gregory, loses his battle with Lyme disease2007-11-24 23:51:00
·Missouri teen, 15, dies from Ehrlichiosis2007-09-04 04:00:00
·Steven F. Wells, 45, dies after battle with Lyme disease and ALS2007-08-14 07:03:39
·Bruno C. Malvezzi2007-07-31 21:06:47
·In loving memory of Dr. Edward McNeil2007-07-24 19:45:00
·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO2007-05-24 04:10:00
·Lyme Disease Skyrockets In Maryland2007-05-23 04:00:00
·C. Peter Thomas, 46; Sound Engineer2007-05-21 04:00:00
·Jimmy Duarte, gifted musician, charismatic islander, dies at 702007-05-17 15:12:03
·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 20072007-04-30 22:50:17
·BETH'S QUEST: Family crusades against Lyme disease2007-04-29 04:00:00
·Tick kit distribution aimed at heading off Lyme disease2007-04-28 12:40:00
·Letter to the Editor: In Memory of Lyme Advocate ''Rose''2007-04-26 11:00:03
·Lyme Advocate ''Rose'' Succumbs to Lyme Disease2007-04-19 18:25:19
·Body of Missing Woman with Lyme Disease Found2007-04-14 21:46:32
·Michael Coers won Pulitzer Prize2007-03-21 10:00:43
·E STREETER IN LYME 'SUICIDE'2007-03-19 12:33:30
·Lost to Lyme Lyme disease facts2007-03-19 04:00:00
·Musician remembered as battler against Lyme disease2007-03-19 04:05:00
·Maine Musician Bill Chinnock Dies2007-03-08 13:45:18
·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle2007-02-27 11:00:00
·JAMES P. KOCH2007-02-22 00:53:49
·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies2006-12-26 04:00:00
·Martin Frank Dumke2006-11-29 04:00:00
·Bill Reynolds: For QB Coen, tragedy lies beneath the surface2006-10-29 04:05:00
·Coen plays on without No. 1 fan2006-10-17 04:00:00
·Librarian was dedicated to students, family2006-09-19 17:02:58
·TORMENT OF BRAIN BUG PROF - Alasdair Crockett2006-09-19 13:43:35
·Widow of Lyme disease victim appeals for help2006-09-18 22:44:57
·Professor commits suicide after catching dementia from tick bite2006-09-17 22:17:12
·Tick talk: Family blames member's death on tickborne illness2006-08-21 04:00:00
·Death of York PA area doctor due to Lyme and ALS2006-04-29 20:40:02
·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 502006-04-22 11:37:59
·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story2006-02-05 14:08:53
·Kym Cooper - Worn down by Lyme2006-01-22 01:56:26
·Kym Cooper, 1968-2006, After long battle with Lyme disease2006-01-19 13:51:02
·Tribe leader Francis mourned2006-01-14 18:22:58
·Easton mourns former selectman after fatal accident2005-12-17 13:04:17
·Educator, union leader dies from complications of Lyme disease2005-12-08 09:25:32
·'A TERRIBLE WAY TO GO'2005-10-22 14:39:56
·Leo Bogart, R.I.P. (1921-2005)2005-10-21 15:55:28
·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead2005-10-21 15:46:44
·Passages: Pat Pepper2005-10-10 01:11:11
·Man loses battle with Lyme disease2005-10-09 10:37:43

[ Read Obituaries ]

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U.S. Army, 1983-1996 Lyme Disease Risk Assessments

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Have any of you had this happen?
by: map
Posted on: 07-13-2011 @ 12:07 am

Before we left for vacation I have honestly been doing great.  So great, that I questioned all that I have been through in the past.   So, we went on vacation and the very day that we came back I felt horrible!   My joints hurt, deep nerve pain down my legs to my feet and down my arms to my hands.  My lower back hurt. 

Have any you had this experience?  What causes this?



Last updated on 07-13-2011 @ 12:07 am


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Posted Comments

Comment By: emmers
(Posted on 06-02-2012 @ 12:06 pm)

Comment: I think it's important to remember what each of us ask God. I love that comment that said if He gave her just one good day she'd take the bad ones with grace. That's a conversation that I think I need to have. I pray every day that my body will use my antibiotics and supplements to heal, that God will help my body fight the infection and eliminate it from my body. I think the sun exposure and stress of coming back resuming the daily life, continuing treatment, etc all contributed. I hope that you feel better and the symptoms decrease. Take the good memories that you made and use them for inspiration on your bad days. 


Comment By: dixie
(Posted on 03-20-2012 @ 06:28 pm)

Comment: I have been trying to recover from Lymes for 2 years now, I was very athletic before I started coming down with multiple symptoms that my internist could not figure out. I finally got diagnoised 9 months later and went to a LLD where I have been on a number of different antibiotics. While it is hard for me to see, I feel better now than 2 years agp and when I feel better I think that I can see a glimpse of my life that was it was before. I have had days that I feel absoutely amazing and when those days come I can hardly remember feeling bad. Then out of nowhere I feel bad, numbness, weakness, moves from limb to limb, I get so despreately unhappy as I feel that I can only live day to day. On days that I feel good I thank God and the friends family and docs that help me and only hope for that day that I will always feel good. On days that I feel bad I am not sure what to do. I get short with my husband and kids, I don't want to do anything and I feel like there is really no one to talk to about this becasue the roller coaster of recovery is so unpredictable. Honestly, its like living like a manic Depressive where my entire world depends on how I feel.Anyway, I have never written in any blogs before but I just feel like talking to others out there that feel like me and those who can give me the strenght and positive energy to keep me moving forward.


Comment By: lymielizzie
(Posted on 07-13-2011 @ 12:22 am)

Comment: At least you felt good during the vaca. Thats the positive here.

I feel awful during vacations and am afraid to go anywhere.

Vacations can be so stressful!

Planning, packing. Anticipating.

Airports are stressful.

Did you fly in a plane? Supposedly it can trigger a herx.

Long car drives can be stressful.

Car and jet lag can trigger stress and symptoms.

Camping can be stressful.

High altitudes can trigger herx reaction.

Over exertion.

Coming home
 
All the laundry you have to do, putting things away.

A little vaca stress can trigger symptoms.

Hope you feel better soon!





Comment By: kam
(Posted on 07-13-2011 @ 08:29 am)

Comment: Glad you were doing better and enjoyed your vacation. Hoping you will recover soon.

Haven't experienced this as not up to the level you are yet. But, I do get post exertional malaise.

It must be so disappointing to be doing well and then have a set back. Hang in there.

Hoping it is a short set back and you don't need to go back to the lyme doc.


Comment By: map
(Posted on 07-13-2011 @ 11:08 am)

Comment:   If I take hot epsom salt baths and go to bed early it seems to help theese symptoms fade.  
  I don't understand, but am so thankful I am at this point with Lyme disease to have some relief.  I told God once, in the thick of it all, that if he gave me one good day I would be so thankful and would endure the bad days with more grace.  Thankfully, He has been so much more gracious to me than to give me just one good day. 
  So I suppose that stress levels induce theese symptoms?   It could make sense, I have been dealing with alot in my mind. 


Comment By: lymielizzie
(Posted on 07-13-2011 @ 12:44 pm)

Comment: Going to bed early can make a huge difference in the kind of day your going to have. It sure does me!

I know a lot of people with lyme enjoy staying up late because they feel better at night. Which makes sense because the sun light and heat can effect us.

I hope God gives you many more good days map!



Comment By: gogirl
(Posted on 07-13-2011 @ 01:17 pm)

Comment: Yep! Dealing with the same thing you are talking about. 

I even went Kayaking on my trip. I wonder if getting to much sun was part of the problem, too? I've been dealing with a lot more mental stuff since coming home 3 weeks ago. That is the most challenging!

Thank you for reminding me to focus on what God has given instead of what is taken away. 

I will remember to praise Him in it all.



Comment By: map
(Posted on 07-13-2011 @ 11:28 pm)

Comment:   I think you could be right about the sun exposure.  I use to live in FL. and was so sick there.  I moved north and havent seen the sun and have made great progress.  Humm....  I think I will keep this in mind just to keep a mental note of this experiance for me.







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