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| ·Lyme Disease Patients Loses a Hero and Friend | 2008-11-16 19:57:38 | | ·Nancy L. (Scully) Strayer: March 20, 1946 - March 12, 2008 | 2008-04-12 04:00:00 | | ·Bite from tick on holiday led to death leap | 2008-04-11 06:49:39 | | ·Rugby great, Mike Gregory, loses his battle with Lyme disease | 2007-11-24 23:51:00 | | ·Missouri teen, 15, dies from Ehrlichiosis | 2007-09-04 04:00:00 | | ·Steven F. Wells, 45, dies after battle with Lyme disease and ALS | 2007-08-14 07:03:39 | | ·Bruno C. Malvezzi | 2007-07-31 21:06:47 | | ·In loving memory of Dr. Edward McNeil | 2007-07-24 19:45:00 | | ·Lyme disease is a growing problem, Britteny Gallgher, Kansas City, MO | 2007-05-24 04:10:00 | | ·Lyme Disease Skyrockets In Maryland | 2007-05-23 04:00:00 | | ·C. Peter Thomas, 46; Sound Engineer | 2007-05-21 04:00:00 | | ·Jimmy Duarte, gifted musician, charismatic islander, dies at 70 | 2007-05-17 15:12:03 | | ·Obituary: Lyme Disease Advocate Karen Johnson ''Rose'' Rose, 1947 - 2007 | 2007-04-30 22:50:17 | | ·BETH'S QUEST: Family crusades against Lyme disease | 2007-04-29 04:00:00 | | ·Tick kit distribution aimed at heading off Lyme disease | 2007-04-28 12:40:00 | | ·Letter to the Editor: In Memory of Lyme Advocate ''Rose'' | 2007-04-26 11:00:03 | | ·Lyme Advocate ''Rose'' Succumbs to Lyme Disease | 2007-04-19 18:25:19 | | ·Body of Missing Woman with Lyme Disease Found | 2007-04-14 21:46:32 | | ·Michael Coers won Pulitzer Prize | 2007-03-21 10:00:43 | | ·E STREETER IN LYME 'SUICIDE' | 2007-03-19 12:33:30 | | ·Lost to Lyme Lyme disease facts | 2007-03-19 04:00:00 | | ·Musician remembered as battler against Lyme disease | 2007-03-19 04:05:00 | | ·Maine Musician Bill Chinnock Dies | 2007-03-08 13:45:18 | | ·Obituary - Eric von Schmidt - Singer and painter was in Dylan's circle | 2007-02-27 11:00:00 | | ·JAMES P. KOCH | 2007-02-22 00:53:49 | | ·Andrew Spielman, 76, Expert on Insect-Borne Diseases, Dies | 2006-12-26 04:00:00 | | ·Martin Frank Dumke | 2006-11-29 04:00:00 | | ·Bill Reynolds: For QB Coen, tragedy lies beneath the surface | 2006-10-29 04:05:00 | | ·Coen plays on without No. 1 fan | 2006-10-17 04:00:00 | | ·Librarian was dedicated to students, family | 2006-09-19 17:02:58 | | ·TORMENT OF BRAIN BUG PROF - Alasdair Crockett | 2006-09-19 13:43:35 | | ·Widow of Lyme disease victim appeals for help | 2006-09-18 22:44:57 | | ·Professor commits suicide after catching dementia from tick bite | 2006-09-17 22:17:12 | | ·Tick talk: Family blames member's death on tickborne illness | 2006-08-21 04:00:00 | | ·Death of York PA area doctor due to Lyme and ALS | 2006-04-29 20:40:02 | | ·Emmy-winner Scott Brazil dies of ALS and Lyme disease at 50 | 2006-04-22 11:37:59 | | ·Kym Cooper- Dead Woman's Own Letter Tells Her Lyme Disease Story | 2006-02-05 14:08:53 | | ·Kym Cooper - Worn down by Lyme | 2006-01-22 01:56:26 | | ·Kym Cooper, 1968-2006, After long battle with Lyme disease | 2006-01-19 13:51:02 | | ·Tribe leader Francis mourned | 2006-01-14 18:22:58 | | ·Easton mourns former selectman after fatal accident | 2005-12-17 13:04:17 | | ·Educator, union leader dies from complications of Lyme disease | 2005-12-08 09:25:32 | | ·'A TERRIBLE WAY TO GO' | 2005-10-22 14:39:56 | | ·Leo Bogart, R.I.P. (1921-2005) | 2005-10-21 15:55:28 | | ·Leo Bogart, 84, Sociologist Who Studied Role of Media in Culture, Is Dead | 2005-10-21 15:46:44 | | ·Passages: Pat Pepper | 2005-10-10 01:11:11 | | ·Man loses battle with Lyme disease | 2005-10-09 10:37:43 |
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Health Care For Americans Has Been Low Priority "When wealth determines access to the public forum, it causes distortions."
"To take just one of many examples, for the past several years , the need to eliminate the inheritance taxes on the wealthiest 1/100 of 1 percent of the families in America (the only taxpayers who are still subjected to it) has been treated as a much more important priority than the need to provide at least minimal access to health care for tens of millions of families who currently have no access to health care coverage at all." From "The Assault on Reason" |
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Talk Back to ABC News about Reforming U.S. Healthcare
ABC's Good Morning America wants to know what problems-- or solutions-- you may have for the U.S. healthcare system. Click Here Talk back to them by sending your video or e-mail questions and comments and you just might get them aired on Good Morning America or ABC News Now! Click Here |
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The untold story of Lyme disease.
A dramatic tale of microbes, medicine and money
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Should healthcare be a right or a luxury?
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Scroll down for Lyme disease in the News Search All 1534 LymeBlog News Stories |
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Featured Blog Comments of the Day
From: lymielizzie On: 01-05-2009 To lymielizzie Re: " Bottoms Up"
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"Cure Unknown: Inside the Lyme Epidemic"
Pamela Weintraub; Hardcover; $14.90 Amazon
Burrascano recommends lyme patients read this book. I ordered a copy today at Amazon.com Quite a bit cheaper than ebay. |
| | ---------------------------------------From: lymielizzie On: 01-05-2009 To lymielizzie Re: " Bottoms Up"
Feeling much better. That 12 hours sleep was just what I needed.
Its a rainy day today. Mike has been keeping busy putting rock in a huge puddle in our yard and the dogs are hunkered down as though they know its raining and they can't go outside and play.
Its a good day for us all to hunker down. My mother in law got me the book Marley and Me. I started reading it and am pleasantly surprised. I would like to go see the movie.
Took extra vit C and a B-12 shot this afternoon. Drinking lots of tea. Mike made me fresh carrot beet with ginger juice. Yum!
| | ---------------------------------------From: lymielizzie On: 01-05-2009 To marley Re: "Dr. Burrascano Jr's., 2008 Guidlines"
Thank you for that update. You must feel reassured that your suspicions have been quelled. I do too.
I take several supps daily and taking NyQuil once a year as needed is quite safe and most effective for me anyway, but thank you for your concern.
Did you ck out JB's slide presentation. Its great and I hear you can purchase it for 15.00 on that website link I provided for you.
| | ---------------------------------------From: marley On: 01-05-2009 To marley Re: "Dr. Burrascano Jr's., 2008 Guidlines"
"Scott Forsgren's listing of the updated guidelines are accurate. ILADS is going to put them up soon in conjunction with a redo of our website." This I got from ILADS. Drop the sarcasm. No wonder it's taken so long to get anything done, everyone is pitting against everyone, blogs against blogs, doctors against doctors and so on. By the way they are going to take another look at the Lyme bill, may be a good idea for everyone to be there when they do; or make calls to Congressman Pallon's office. Maybe the supplements would be better for your body than the Nyquil. | | ---------------------------------------From: lymielizzie On: 01-05-2009 To marley Re: "Dr. Burrascano Jr's., 2008 Guidlines"
Good for you Marley. IF there is an updated 2008 lyme guideline by Burrascano don't you think he would have it posted at ILADS first? Something seems fishy. You are most wise to wait.
| | ---------------------------------------View All 1792 LymeBlogsView All 128 LymeBlog AuthorsView All 2285 LymeBlog Comments |
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Delivered Directly to You
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 | People with Lyme: H.S. boys basketball preview: Delisser’s great comeback |
H.S. boys basketball preview: Delisser’s great comeback Norwich Bulletin, Norwich, CT USA By MARC ALLARD, Norwich Bulletin
Killingly senior rehabs from freak illness |
Danielson, Conn. — He said it with a nonchalance that belies the seriousness of the situation.
“I was close. I wasn’t supposed to come through.”
Derrick James Delisser — better known as D.J. to those close to him — said it with a smile and then a laugh. It’s the best defense mechanism one can find when talking about what the 17-year-old went through a month ago, when he was lying in a comatose state in a hospital bed in Hartford.
It’s not how many view the Killingly High School senior, who was supposed to be the go-to player this basketball season, now that Shane Gibson is playing Division I basketball at Sacred Heart. |  Photo: John Shishmanian, Norwich Bulletin
D.J. Delisser plays for the Killingly High School basketball team. |
Delisser was the third-leading scorer on the Redmen a year ago with almost nine points a game, below that of Gibson (29 points per game) and Tom Derosier. Delisser was impressive enough to earn an academic/athletic scholarship at Salve Regina College in Newport and his coach, Scott Derosier, expected him to be one of the top performers in the Eastern Connecticut Conference this season.
That all changed shortly before Thanksgiving.
Unlike many tragic incidents involving teenagers, this was nothing of Delisser’s doing. This was simply a case of a teenager’s body almost betraying him and he never saw it coming.
“I had played all summer and was counting down the weeks toward the first practice,” Delisser said. “The week before that first practice, I was talking to my friend D.J. (Grimes) about how practice was coming and how I was in perfect shape and then I got hit. About three weeks ago, I was sick in school and couldn’t eat. I went home, had a fever and started to throw up so I thought it was just the flu.”
Scott Derosier visited an open gym session for his players on the Wednesday one week prior to Thanksgiving, the night that Delisser fell ill. He knew something was amiss when Delisser — whom he could count on to be in the gym “as sure as the sun rising” — wasn’t there.
Delisser battled those symptoms for about four days. That’s when his mother, Donna Amoroso, decided that her son had to go to the hospital. Weak and dehydrated, Delisser was admitted and soon transferred to Children’s Medical Center in Hartford.
He was diagnosed with pneumonia in both lungs — bad enough by itself, but it was coupled with an unknown radical virus (originally thought to be Lyme disease) that was beginning to threaten Delisser’s life.
“I got a text message that D.J. was in the hospital and he had pneumonia and Lyme disease,” Derosier said. “Next thing I heard, he was in intensive care and things were getting progressively worse.”
Derosier had already dealt with ...
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Posted by Editor on Saturday, January 03 @ 13:51:50 EST (29 reads)
(Read More... | 8542 bytes more | comments? | People with Lyme | Score: 0)
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 | Lyme in Sports: Sam Stosur is feeling healthy again and ready to rise up the rankings |
Sam Stosur is feeling healthy again and ready to rise up the rankings Fox Sports, Australia By Margie McDonald
SUMMER is here in Australia and a healthy Samantha Stosur has a golden opportunity to shine at home and give her ranking a deserved boost in the process. |
| The 24-year-old from the Gold Coast missed the Australian season 12 months ago due to complications from trying to return from the debilitating effects of Lyme disease and a secondary virus. |  Photo: AFP Focused ... the Australian is fit again and keen to climb.
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Stosur had not missed a Grand Slam in four years, but had to withdraw from last January's Australian Open, along with the Sydney and Gold Coast WTA events. Her ranking slipped below 150 during the height of her problems.
But with steady results in singles - 27-16 by season's end - she moved back to No.52. Add to that some strong doubles results, runner-up at both Wimbledon and the US Open, and Stosur retrieved her fitness and determination to make up for lost time.
With no ranking points to defend from the three Australian tournaments - the Brisbane International being first off the rank starting tomorrow week - Stosur has a real chance to make a giant leap towards the top 20.
"I'm really happy with the way things went," Stosur said about her encouraging end to 2008.
"I didn't know what to expect, but I started playing really well and by the end of the year it was some of my best tennis. "Going into this year, I've done everything I possibly can and I'm hoping to build on the last six months." It would not have escaped the right-hander and her coach, David Taylor, who took Alicia Molik to world No.8 in 2005, of the potential to climb the rankings. Winning a few rounds in Brisbane and then in the Sydney International (January 11-18) would have her knocking on the door of the top 30 by the time the Australian Open begins on January 19. "It would be nice to do that, but I haven't really thought about rankings and where I want to be at the end of the summer," Stosur said. "The focus is playing well and hopefully that means I'll win a lot of matches and that (ranking) will take care of itself. But if I can finish January or February inside the top 30, then I'd be very happy with that." Stosur's doubles results are outstanding with 22 titles, including four Grand Slams. She would be sick of people bringing up her singles ...
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Posted by Editor on Saturday, December 27 @ 09:55:00 EST (392 reads)
(Read More... | 4343 bytes more | 2 comments | Lyme in Sports | Score: 0)
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 | People with Lyme: In bacteria, vet sees key to human ills |
In bacteria, vet sees key to human ills The News Observer, Raleigh, NC USA By Sarah Avery - Staff Writer
| A notion struck Betsy Sigmon on the way to the hospital to tend to her 13-year-old son Jason.
The youngster, who was admitted after suffering weeks of excruciating headaches, had been bitten by a tick days before he grew sick. While blood tests showed no hint of a tick-borne infection, the idea nagged at her.
So Sigmon called Dr. Ed Breitschwerdt, a veterinary researcher at N.C. State University. Sigmon, herself a vet, knew Breitschwerdt studied tick-borne diseases.
"Do you know of any kind of infectious agent that might be causing Jason's symptoms?" Sigmon recalls asking Breitschwerdt.
In reaching out to Breitschwerdt, Sigmon turned to a man who may know a hidden cause behind many chronic human ailments that often aren't recognized as infections transmitted by animals and insects.
With the right diagnosis using a process he patented, Breitschwerdt says, many could be easily cured with antibiotics.
Medical doctors have been slow to listen to a veterinarian about how to treat humans, but promising results are helping Breitschwerdt's views gain acceptance. Antibiotic treatment has cured people of pain and weakness doctors originally attributed to migraines, chronic fatigue and even multiple sclerosis.
At the heart of Breitschwerdt's research is a pathogen carried by insects -- a bacteria known as Bartonella. Spread by biting pests such as fleas, lice, sandflies and possibly ticks, Bartonella are difficult to detect in human blood. As a result, Breitschwerdt thinks the bacteria are taking an unacknowledged toll on human health.
"I believe it's a silent epidemic," says Breitschwerdt, who is also an adjunct professor in infectious diseases at Duke University Medical School.
His belief is based on his own patients -- the cats, dogs, rabbits, cows and other animals that harbor Bartonella in their blood. With so many insects spreading the bacteria to so many animals, he contends, the bugs are certain to readily infect humans.
Breitschwerdt suspected a Bartonella infection was behind Jason Sigmon's headaches. He urged Betsy Sigmon to ask the hospital staff at WakeMed to ...
|  Photo: Staff Photo by Jason Arthurs
Jason Sigmon, left, had severe headaches after being bitten by a tick. Doctors initially found no evidence of a tick-borne infection.
RESEARCH MONEY LAGSDr. Ed Breitschwerdt at N.C. State says research funding is hard to come by -- a problem for many tick-borne diseases. For example, Lyme disease affects nearly 30,000 people a year, including 52 last year in North Carolina. But funding for research into Lyme and other tick-borne diseases is just $29 million a year, said Pat Smith, president of the Lyme Disease Association, a Connecticut-based group that funds research and promotes education in tick-borne diseases. By comparison, Smith says, the government is spending $80 million a year researching West Nile virus, a mosquito-borne illness that infected just 3,600 people in the United States last year, according to the Centers for Disease Control and Prevention. "It's just outrageous," Smith says, noting that researchers such as Breitschwerdt are finding a growing family of Bartonella that could easily demonstrate a widespread infection. "Some people don't even recognize that Bartonella is tick-borne."
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Posted by Editor on Tuesday, December 23 @ 04:00:00 EST (421 reads)
(Read More... | 7707 bytes more | 3 comments | People with Lyme | Score: 5)
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 | People with Lyme: Mother-daughter time is cut short |
Mother-daughter time is cut short Centre Daily Times, Bellafonte, PA USA By Chris Rosenblum
For Renee Steffensmeier, retirement has proved disappointing.
She’s disappointed that she and her daughter, Emily, now spend less time together. She regrets not being able to garden as much, and having fewer chances to read, walk exercise, do yoga, take classes and clean out her house.
Retirement would be better if she were, in fact, still retired.
Alarmed by her shrinking savings, Steffensmeier, 63, returned to the work force earlier this month, taking a part-time job on the circulation desk of the Schlow Centre Region Library.
The work pays $9.22 an hour, for 24 hours a week — a drop from the roughly $50,000 she earned as an assistant professor of sociology at Penn State Altoona before leaving last year.
|  Photo: CDT/Michelle Bixby
Renee Steffensmeier, right, chats with her daughter Emily Steffensmeier after dinner.
 Photo: CDT/Michelle Bixby
Renee Steffensmeier, right, chats with her daughter Emily Steffensmeier after dinner. |
"I think it gives me a little bit more security, having the income from my job,” Steffensmeier said. “It allows me, hopefully, to let the assets accrue for a while, and then we’ll see in the coming years.”
In the meantime, her decision robs her of afternoons with her main reason for retiring.
Emily Steffensmeier, now 33, suffers from chronic exhaustion and pain brought on by nervous system disorders and Lyme disease. She depends on her mother for meals, medicine packs, laundry, rides for appointments and errands and other daily activities.
Five years ago, Renee Steffensmeier felt stretched thin and began a phased retirement to focus on caregiving.
“I thought if I was financially able, I would retire early,” she said. “And I thought I was in good financial shape.”
Over a 30-year career, she had saved $750,000 in her Teachers Insurance and Annuity-College Retirement Equities Fund, which provides a pension, and other investments. She also chose early Social Security benefits amounting to $1,200 a month.
She counted on the money sustaining her for 20 to 30 years, but after a third of it vanished in retirement, she began worrying about the future.
“I thought, ‘I just can’t keep taking this money out,’ ” she said.
Support comes from her ex-husband, who covers much of Emily’s medical costs, such as for massages and antibiotic shots. But Steffensmeier pays the household bills, and her daughter’s special dietary needs are not cheap. Reluctantly, she looked for a job.
Unsure of her ...
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Posted by Editor on Tuesday, December 16 @ 08:33:56 EST (143 reads)
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 | Book Review: Merry Lyme disease informed Christmas |
LymeBlog News Lexington, KY USA By LymeBlog Staff
Lyme disease books and movies just in time for Christmas |
Get your own copy of the DVD documentary movie about Lyme disease, "Under Our Skin"! Available from author PJ Langhoff, limited quantities first come first served. Contact PJ Langhoff at pj@allegorypress. comDVD price is $30.00 for a limited time (plus $2.00 for shipping to the U.S.) That is about $10 off the regular price!
| | | The untold story of Lyme disease. A dramatic tale of microbes, medicine and money |
Allegory Press is proud to announce the release of the "It's All In Your Head" Series of Books on Lyme Disease by author PJ Langhoff.
Book 1: "It's All In Your Head," Patient Stories From the Front Lines Intimate Aspects of Chronic and Neuropsychiatric Lyme Disease Foreword by Dr. Joseph Jemsek - 7.5"x10", standard, large print and e-book editions
Book 2: "It's All In Your Head," Around the World in 80 Lyme Patient Stories Valid Reasons to Debate Current Treatment Guidelines Foreword by Dr. Joseph Burrascano, Jr. - 7.5"x10", standard, large print and e-book editions
SPECIAL BOOK OFFERS! From the groundbreaking series "It's All In Your Head"
Book 1: Patient stories from the front lines Book 2: Around the world in 80 Lyme patient stories Standard or large print editions, all the same price thru December 31, 2008 For a limited time Just $20.00 ea. (plus shipping, though some orders ship free)
ANNOUNCING COMING J |
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